Table 1.
Participant Characteristics at Baseline
| Characteristic | No. (%) of Patients |
P | ||
|---|---|---|---|---|
| Entire Cohort | Highest 2 Tertiles of Awareness | Lowest Tertile of Awareness | ||
| Total patients | 369 (100.0) | 233 (63.1) | 136 (36.9) | NA |
| Male sex | 195 (52.9) | 123 (52.8) | 72 (52.9) | .98 |
| Diagnosis | ||||
| Leukemia | 165 (44.7) | 93 (39.9) | 72 (52.9) | .05 |
| Lymphoma | 90 (24.4) | 61 (26.2) | 29 (21.3) | |
| Solid tumor | 114 (30.9) | 79 (33.9) | 35 (25.7) | |
| History of hematopoietic cell transplantation | 125 (33.9) | 85 (36.5) | 40 (29.4) | .17 |
| Race/ethnicity | ||||
| Non-Hispanic white | 141 (38.2) | 107 (45.9) | 34 (25.0) | .37 |
| Hispanic | 175 (47.4) | 96 (41.2) | 79 (58.1) | |
| Other/unknown | 53 (14.4) | 30 (12.9) | 23 (16.9) | |
| Median (range) age at diagnosis, years | 11 (0-21) | 12 (0-21) | 9 (0-21) | .13 |
| Median (range) age at study entry, years | 24 (5-57) | 24 (5-57) | 22 (5-53) | .46 |
| Median (range) time from diagnosis to study entry, years | 10.6 (2.8-55.8) | 10.0 (3.1-55.8) | 11.2 (2.8-40.2) | .44 |
| Educational level of survey respondent at study entry* | ||||
| Low | 63 (17.4) | 30 (13.0) | 33 (25.0) | .002 |
| Appropriate | 187 (51.5) | 117 (50.7) | 70 (53.0) | |
| Exceeds | 113 (31.1) | 84 (36.4) | 29 (22.0) | |
| Monolingual Spanish speaking | 30 (8.1) | 17 (7.3) | 13 (9.6) | .43 |
Abbreviation: NA, not applicable.
*
A total of 363 patients had data available about education level. For patients age younger than 20 years who completed the questionnaire independently, low represents below grade level; appropriate, at grade level; and exceeds, above grade level. For patients age 20 years or older who completed the questionnaire independently or whose parents completed the questionnaire, low represents less than a high school graduate education; appropriate, high school graduate or training; and exceeds, college graduate.