Table 1.
Overview of patient participants and interviews conducted
| Patient | Aetiology | DEPCAT | MELD at recruitment | Months in study | Admissions during study involvement | Interviews per time point (P=patient; C=carer; P&C=joint) | Status at end of study |
|---|---|---|---|---|---|---|---|
| Male, 68 | ALD | 4 | 14 | 12 | 0 | P&C1, P&C2, P&C3 | Alive |
| Female, 38 | ALD, HCV | 5 | 20 | 12 | 3 | P1, P2, P3, C1, C2, C3; GP | Alive |
| Female, 66 | AIH | 4 | 20 | 5 | 5 | P1, P2 | Dead |
| Female, 60 | ALD | 5 | 17 | 7 | 6 | P1, P2, C1, Bereavement; Consultant | Dead |
| Female, 84 | NAFLD | 4 | 9 | 11 | 13 | P1, P2, P3 | Dead |
| Male, 74 | HCC (NAFLD) | 7 | 17 | 1 | 0 | P1, Bereavement; GP | Dead |
| Male, 77 | ALD (NAFLD) | 6 | 9 | 9 | 21 | P1, P&C2, P&C3; GP; Palliative Care Nurse | Dead |
| Male, 75 | NAFLD | 3 | 21 | 6 | 9 | P1; GP | Dead |
| Male, 35 | ALD | 4 | 24 | 12 | 5 | P1, P2, P3, C1, C2; Alcohol Liaison Nurse | Alive |
| Male, 58 | ALD | 5 | 13 | 6 | 7 | P1 | Dead |
| Female, 41 | Cryptogenic | 3 | 10 | 8 | 5 | P&C1, P2, C2, P&C3; GP | Alive |
| Female, 56 | ALD, HCV | 4 | 13 | 6 | 0 | P1 | Alive |
| Female, 45 | ALD | 3 | 16 | 7 | 2 | P1, P2; GP | Dead |
| Female, 68 | NAFLD | 3 | 15 | 5 | 9 | P&C1, Bereavement; GP | Dead |
| Female, 37 | ALD | 7 | 26 | 9 | 2 | P&C1, P&C2, P&C3; GP | Alive |
(DEPCAT (Deprivation Category index): 1=least deprived; 7=most deprived).
AIH, autoimmune hepatitis; ALD, alcohol-related liver disease; GP, general practitioner; HCC, hepato-cellular carcinoma; HCV, hepatitis C virus; MELD, Model of End-Stage Liver Disease; NAFLD, non-alcoholic fatty liver disease.