Table S1.
Patient perception of preference-elicitation exercise (N=56)
| Domain: increased patient engagement with clinicians |
| “[The patient elicitation exercise] got me thinking about stuff that I never thought about before. Maybe I’ll start reading what I’m taking instead of depending on the doctor to tell me so and so […] cuz I have stopped taking some stuff that had given me like flu symptoms”. [pt 33] |
| “I believe [the exercise] is interesting number one. It’s informative. I never thought about all of this at one time. In other words, one of two things crossed my mind but never all of them. Based actually on the same thing, just a different way of putting each thing … Makes you think”. [pt 17] |
| “[…] the most difficult part of [the exercise] was the choice of one bad thing increasing with a decrease in a good thing happening. You know, not agood thing, but a different bad thing. Yeah, that [the trade-off] was a little difficult”. [pt 47] |
| “I think it’s good that you make me address these things … I think there’s a lot more that we need to start paying attention to”. [pt 24] |
| Domain: increased patient awareness of treatment preferences |
| “[The preference elicitation exercise] gave me more insight into what I am feeling about the medications that I’m taking, and how I’m feeling about the differences between the strokes, the heart attacks, the bleeds, and things like that. To be honest about it, I hadn’t really ever thought about it that much. So, this has gave me some kind of insight”. [pt 25] |
| “I can see where the benefit of knowing these things is better than the risk of not knowing about these health conditions, because I have them andI need to be more conscious about doing the things that I need to do and that I will be on these medicines for the rest of my life …”. [pt 4] |
| “[The preference elicitation exercise] shows what is more important to me … As far as my activities and the results that can happen … it shows that someone’s trying to see what the patient’s main concerns are”. [pt 9] |
| “I think [the preference elicitation exercise] is something that is beneficial. It really determines how you feel about your condition and the medications you take”. [pt 45] |
| “I just don’t want to have a heart attack and I don’t want to have a stroke, and they’re both up there (on graphical representation of preferences). |
| I don’t know that much about bleeding in the brain but it just didn’t sound good to me at all. I think knowing that the medicine I’m taking is going tokeep me from having either a stroke or heart attack, and so I’m going to keep taking [it]”. [pt 33] |
| Domain: increased activation |
| “My biggest concern is bleeding into the brain … and second up is the stroke and the heart attack … Yeah, [I] definitely think [the preference elicitation exercise] is worthwhile – to be given this information and be able to use it in my decision”. [pt 36] |
| “I would definitely have to ask [the physician] to monitor the ones I deem necessary in [the preference elicitation exercise] … I would question him about it and make sure he monitors it”. [pt 23] |
| “I am telling [the physician] my concerns when I have a checkup as far as the medications that I take”. [pt 9] |
| “If these percentages (on graphical representation of preferences) are anywhere near right, I’m gonna be talking to my doctor a little bit better”. [pt 17] |
| “I have never questioned a doctor and their medications … But I’ve, I think I’ve gotten to a point maybe I need to from now on”. [pt 24] |
| “Well, if there’s a decision to be made about what to do about my particular condition, this information and the way I feel on the survey would come into bearing on [the] decision that I would make with my physicians”. [pt 47] |
Abbreviation: pt, patient.