Table 2.
Participant Demographics for Pain Experience Elicitation Interviews
| Child/Teen (N=28) | Parent-Proxy (N=14) | ||
|---|---|---|---|
| Variable | N (%) | Variable | N (%) |
| Gender | -- | Child Gender | -- |
| Male | 10 (36%) | Male | 3 (21%) |
| Female | 18 (64%) | Female | 11 (79%) |
| Diagnosis* | -- | Child’s Diagnosis | -- |
| SCD | 5 (18%) | SCD | 2 (14%) |
| JIA | 11 (39%) | JIA | 5 (36%) |
| JFM | 4 (14%) | JFM | 3 (21%) |
| Misc. | 8 (29%) | Misc. | 4 (29%) |
| Age | -- | Child’s Age | -- |
| 8–12 years | 10 (36%) | 8–12 years | 4 (29%) |
| 13–18 years | 18 (64%) | 13–18 years | 10 (71%) |
| Ethnicity | -- | Child’s Ethnicity | -- |
| Non-Hispanic | 27 (97%) | Non-Hispanic | 14 (100%) |
| Hispanic | 1 (3%) | Hispanic | 0 (0%) |
| Race | -- | Child’s Race | -- |
| White/Caucasian | 19 (68%) | White/Caucasian | 9 (64%) |
| More than one race | 1 (3%) | More than one race | 1 (7%) |
| Black/African American | 8 (29%) | Black/African American | 4 (29%) |
| Highest Grade Completed | -- | Highest Grade Completed (Child) | -- |
| 3rd or lower | 2 (7%) | 3rd or lower | 0 (0%) |
| 4th or 5th | 5 (18%) | 4th or 5th | 3 (21%) |
| 6th–8th | 10 (36%) | 6th–8th | 6 (43%) |
| 9th–11th | 10 (36%) | 9th–11th | 5 (36%) |
| High school degree/GED | 1 (3%) | High school degree/GED | 0 (0%) |
| Parent Ethnicity | -- | ||
| Non-Hispanic | 14 (100%) | ||
| Hispanic | 0 (0%) | ||
| Parent Race | -- | ||
| White/Caucasian | 9 (64%) | ||
| More than one race | 1 (7%) | ||
| Black/African American | 4 (29%) | ||
| Highest Grade Completed (Parent) | -- | ||
| 7th or 8th grade | 1 (7%) | ||
| High school degree/GED | 2 (14%) | ||
| Some college | 5 (36%) | ||
| College degree | 6 (43%) | ||
*
SCD = Sickle Cell Disease; JIA = Juvenile Idiopathic Arthritis; JFM = Juvenile Fibromyalgia; Misc.= migraine (2), back pain (2), postural orthostatic tachycardia syndrome with chronic pain (2),chest/gastric pain, complex regional pain syndrome (hand)