Table 3.
Demographics and clinical characteristics of Cognitive Interview participants
| N=15 Round 1 | Approx. % | N=19 Round 2 | Approx. % | |
|---|---|---|---|---|
| Gender | ||||
| Male | 4 | 26.7% | 10 | 52.6% |
| Female | 11 | 73.3% | 9 | 47.4% |
| Age | ||||
| 8–9 years | 2 | 13.3% | 2 | 10.5% |
| 10–12 years | 5 | 33.3% | 8 | 42.1% |
| 13–18 years | 8 | 53.3% | 9 | 47.4% |
| Grade Completed in School | ||||
| 2nd −5th | 5 | 33.3% | 7 | 36.8% |
| 6th-12th | 10 | 66.7% | 12 | 63.2% |
| Reading Score* | N/A | N/A | ||
| 80–100 | 6 | 40.0% | N/A | N/A |
| 100–120 | 4 | 26.7% | N/A | N/A |
| 120 + | 5 | 33.3% | N/A | N/A |
| Mean | 109.53 | N/A | N/A | N/A |
| Race | ||||
| Caucasian | 10 | 66.7% | 12 | 63.2% |
| African American | 3 | 20.0% | 7 | 36.8% |
| Other-Mixed | 2 | 13.3% | 0 | 0% |
| Ethnicity | ||||
| Hispanic | 0 | 0% | 1 | 5.3% |
| Non-Hispanic | 15 | 100% | 18 | 94.7% |
| Diagnosis | ||||
| JIA | 4 | 26.7% | 8 | 42.1% |
| Musculoskeletal pain | 7 | 46.7% | 6 | 31.6% |
| Migraine/Chronic headache | 2 | 13.3% | 0 | 0% |
| Sickle cell disease | 1 | 6.7% | 5 | 26.3% |
| Abdominal pain | 1 | 6.7% | 0 | 0% |
| Guardian Relationship to Child | ||||
| Mother, Stepmother | 12 | 80.0% | 17 | 89.5% |
| Father, Stepfather | 0 | 0% | 1 | 5.3% |
| Grandmother | 0 | 0% | 1 | 5.3% |
| Missing | 3 | 20.0% | 0 | 0% |
| Guardian Education Status | ||||
| Advanced degree | 2 | 13.3% | 3 | 15.8% |
| College | 4 | 26.7% | 7 | 36.8% |
| Some College | 3 | 20.0% | 6 | 31.6% |
| High school degree/GED | 2 | 13.3% | 2 | 10.5% |
| 7th or 8th grade | 1 | 6.7% | 1 | 5.3% |
| Missing | 3 | 20.0% | 0 | 0% |
*
based on WRAT Reading Composite standard score where 100 represents the mean (SD=10), age-adjusted.