Table 6.
Family Caregiver Intervention Education Topics Selected Physical, Psychological, Social and Spiritual Well-Being
| Quality of Life Domain | Early Stage Caregivers N=65 |
Late Stage Caregivers N=72 |
Total N=137 |
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|---|---|---|---|---|---|---|
| PHYSICAL WELL BEING | N | % of Cases | N | % of Cases | N | % of Cases |
| Fatigue | 55 | 85% | 46 | 64% | 101 | 74% |
| Pain | 31 | 48% | 22 | 31% | 53 | 39% |
| Appetite Problems/Weight Loss | 28 | 43% | 24 | 33% | 52 | 38% |
| Breathing Problems/Cough | 21 | 32% | 29 | 40% | 50 | 36% |
| Sleep Problems | 23 | 35% | 12 | 17% | 35 | 26% |
| Nausea/Vomiting | 18 | 28% | 14 | 19% | 32 | 23% |
| Constipation | 12 | 18% | 13 | 18% | 25 | 18% |
| Skin, Nail, Hair Changes | – | – | 14 | 19% | 14 | 10% |
| Swelling | – | – | 8 | 11% | 8 | 6% |
| Diarrhea | – | – | 7 | 10% | 7 | 5% |
| Other | 5 | 7% | – | – | 5 | 4% |
| PSYCHOLOGICAL WELL BEING | N | % of Cases | N | % of Cases | N | % of Cases |
| Worry and Fear | 59 | 91% | 34 | 47% | 121 | 88% |
| Depression | 37 | 57% | 42 | 58% | 79 | 58% |
| Anger | 34 | 52% | 23 | 32% | 57 | 42% |
| Cognitive Changes | 28 | 43% | 28 | 39% | 56 | 41% |
| Other | 5 | 1% | 23 | 32% | 28 | 20% |
| SOCIAL WELL BEING | N | % of Cases | N | % of Cases | N | % of Cases |
| Communication | 60 | 92% | 47 | 65% | 107 | 78% |
| Health Care Planning | 35 | 54% | 49 | 68% | 84 | 61% |
| Changes in Relationships | 44 | 68% | 32 | 44% | 76 | 55% |
| Social Support | 38 | 58% | 30 | 42% | 68 | 50% |
| Financial Burden | 12 | 18% | 9 | 12% | 21 | 15% |
| Sexual Changes | 9 | 14% | 4 | .05% | 13 | 1% |
| Other | ||||||
| SPIRITUAL WELL BEING | N | % of Cases | N | % of Cases | N | % of Cases |
| Purpose and Meaning | 35 | 54% | 39 | 54% | 74 | 54% |
| Hope | 30 | 46% | 37 | 51% | 67 | 49% |
| Inner Strength | 45 | 69% | 22 | 31% | 67 | 49% |
| Redefining Self & Priorities | 38 | 58% | 15 | 21% | 53 | 39% |
| Positive Changes | 32 | 49% | 6 | 1% | 38 | 28% |
| Uncertainty | 11 | 17% | 22 | 31% | 33 | 24% |
| Other | ||||||