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. Author manuscript; available in PMC: 2016 Dec 1.
Published in final edited form as: Cancer Epidemiol Biomarkers Prev. 2015 Sep 29;24(12):1844–1849. doi: 10.1158/1055-9965.EPI-15-0401

Table 1.

Characteristics of AYA HOPE Participants

Frequency %
SOCIO-DEMOGRPAHIC VARIABLES
Age at Diagnosis (Years)
  15 – 19 62 12.8
  20 – 29 211 43.5
  30 – 39 212 43.7
Sex
  Male 303 62.5
  Female 182 37.5
Race/Ethnicity
  White 394 81.2
  Black 39 8.0
  Asian 36 7.4
  Unknown1 16 3.3
Health Insurance Status
  Yes 442 91.1
  No 36 7.4
  Unknown 7 1.5
Service Needed
Nurse Come to Home
  Yes 30 6.2
  No 434 89.5
  Unknown 21 4.3
Support Groups
  Yes 86 17.7
  No 374 77.1
  Unknown 25 5.2
Mental Health Services
  Yes 122 25.2
  No 341 70.3
  Unknown 22 4.5
Physical / Occupational Therapy
  Yes 68 14.0
  No 391 80.6
  Unknown 26 5.4
Pain Management Specialist
  Yes 59 12.2
  No 404 83.3
  Unknown 22 4.5
Any Service Needed
  Yes 192 39.6
  No 293 60.4
CLINICAL VARIABLES
Health Status
  Good / Very Good / Excellent 404 83.3
  Fair / Poor 81 16.7
Site
  Germ Cell Tumor 189 39.0
  Hodgkin Lymphoma 134 27.6
  Leukemia 21 4.3
  Non-Hodgkin Lymphoma 117 24.1
  Sarcoma 24 5.0
Cancer Stage
All Cancers Combined
  Stage I 161 33.2
  Stage II 139 28.7
  Stage III 66 13.6
  Stage IV 50 10.3
  Unknown 69 14.2
Treatment Received
Surgery Only
  Yes 59 12.2
  No 426 87.8
Radiation Only
  Yes 52 10.7
  No 433 89.3
Chemotherapy Only
  Yes 238 49.1
  No 247 50.9

AYA = Adolescents and Young Adults

1

Unknown Race includes selections for American Indian / Alaskan Native