Table 2.

Interview guide example questions

What was it like for you to participate in this study? Please tell me about your plans to become a parent now. What will you do differently about having children because you participated in this study? Why? What will you keep the same? Why? Do you think that you have a chance to have a child with sickle cell disease? Why or why not? Do you think that you have a chance to have a child with sickle cell trait? Why or why not? What would it be like to have a child with sickle cell disease? Some individuals or groups think you should do all you can do to not have a child with sickle cell disease. Do you agree with them? Why or why not? What information have you searched out from other sources while you participated in the study (Internet, hard copy books, pamphlets, health professionals, friends, family)? Did the information that you received from these sources help you to answer the questions in the program? If so, how? What do you feel were the strengths of the computer program? What are the things you really like about the program? What do you feel were the weaknesses of the computer program? What are the things you did not like about it? How can we improve this computer program? What do you recommend? Your comments about the computer program are particularly helpful. These are the types of information that we were trying to get at. Is there anything else you want to add?