Table 2.
Challenges to Engaging Patients and Other Stakeholders in Research Reported by PCORI Pilot Projects Investigators (N = 37)
| Resolved | |||||
|---|---|---|---|---|---|
| Challenge | % | Not at all % | Partially % | Completely % | Strategies for resolution |
| Lack of stakeholder time | 46 | 6 | 65 | 29 | • Surveying stakeholders and planning meetings with significant lead time • Hold meetings less frequently or with fewer stakeholders • Provide maximum compensation |
| Lack of research team time | 35 | 8 | 77 | 15 | NR |
| Lack of stakeholder training/background | 30 | 0 | 73 | 27 | • Seeking out support from existing resources at their institution |
| Difficulty finding appropriate representatives to engage | 27 | 10 | 70 | 20 | • Expand their stakeholder recruitment by networking within the group of stakeholders already engaged |
| Lack of research team resources | 24 | 0 | 78 | 22 | NR |
| Lack of research team training/background | 22 | 0 | 63 | 38 | • Researcher training on cultural sensitivity and community engagement |
| Lack of stakeholder resources | 16 | 17 | 83 | 0 | NR |
| Lack of perceived value among stakeholders | 11 | 25 | 75 | 0 | NR |
| Lack of perceived value among research team | 8 | 0 | 100 | 0 | NR |
NR none reported