Table 3.

Usefulness of the different parts of the portal, as mentioned by the participants.

Mentioned effects, advantages		Example quote
Access to medical record
	Feeling more in control	“It’s very functional to be able to check your appointment, to check the blood values and what was said during a consult. Being able to control your own treatment.” [Female, 22 years]
	Keeping pace with illness activity	“You have the most recent values and you are able to compare them with the latest values. I once had a liver condition and could see that on the values, it was obvious.” [Female, 20 years]
	Reminder tool	“Recently I wondered what we agree on as treatment and medication and now I was able to look it up. Also when I had an appointment I found out that the appointment was half an hour earlier than I thought.” [Female, 20 years]
	Being able to share data with others (parents)	“My parents never accompany me and now I am able to show them the summary of the consult.” [Female, 21 years]
e-Consult
	Easier communication with the hospital	“To send a notice is easier than phoning to the hospital. I send a message and it doesn’t matter if it’s inconvenient. If I call, it might be inconvenient.” [Female, 22 years]
	Better communication with doctor/nurse	“You’re able to think things through and to explain it better.” [Female, 18 years]
Self-monitoring
	Facilitates communication with physician	“If things become worse suddenly, it is handy because you know when it went wrong. The doctor is also able to see when it went wrong. Because sometimes I’m ill and when he asks I don’t know when I was ill.” [Female, 19 years]
	Provides insight into (the course of) the disease	“Yes, especially when I thought I’m in pain and very tired, it immediately asks what have you done to prevent it and every time you’re not able to answer this question you know that you should have been less active.” [Female, 20 years]