Figure 2.
Distribution of parent responses to outlook items based on frequency of thoughts. For all items, responses ranged from “none of the time” to “all of the time.” At least one-half of all parents reported very frequent (“most” or “all of the time”) thoughts about the anticipated difficulty of transplantation for their child (“Transplant will be difficult for my child”) or themselves (“Transplant will be difficult for me”). Far fewer reported frequent thoughts about adverse child health outcomes (“My child’s future health will be worse than it is now” and “My child might die” items). n = 363 for all except “transplant worse,” with n = 362.