Table 2.
N | N Missing | CC | Mean | SD | Minimum | Maximum | |
---|---|---|---|---|---|---|---|
Transplant Difficult subscale* | 363 | 0 | 64.4 | 25.6 | 0 | 100 | |
Transplant will be difficult for my child. | 362 | 1 | 0.66 | 66.8 | 26.9 | 0 | 100 |
Transplant will be difficult for me. | 363 | 0 | 0.66 | 70.0 | 29.4 | 0 | 100 |
Health Worse subscale* | 363 | 0 | 40.7 | 25.7 | 0 | 100 | |
My child’s future health will be worse than it is now. | 363 | 0 | 0.55 | 39.6 | 29 | 0 | 100 |
My child might die. | 363 | 0 | 0.55 | 41.9 | 28.2 | 0 | 100 |
Parent Outlook Scale (a ¼ 0.75)* | 363 | 0 | 52.5 | 21.7 | 0 | 100 |
CC indicates the Pearson correlation coefficient for items within a subscale.
Parents rated the frequency of their thoughts on a 5-point Likert scale, with response options of “1, none of the time”; “2, a little of the time”; “3, some of the time”; “4, most of the time”; and “5, all of the time.” Mean raw scale and subscale scores (range, 1–5) were computed and converted to a 100-point scale (with higher values representing greater frequency of thoughts).
Higher scores reflect greater frequency of parent thoughts about the potential difficulty of the transplantation course or their child’s worsened future health.