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Who parents and extended family members had received initial information from
| Relationship to patient | Health professional | Spouse | Parent of affected child | Family knowledge | Cousin | Total |
|---|---|---|---|---|---|---|
| Parent | 22 | 2 | 24 | |||
| Extended family member | 0 | 1 | 26 | 2 | 1 | 30 |
| Total | 22 | 3 | 26 | 2 | 1 | 54 |
