Table 2.

Summary data for symptoms variables.

Construct	Instrument	Responses	Results, n = 216
Physical activity	PROMIS Global Health – physical function item (Hays et al., 2009)	Completely	29 (13.4%)
		Mostly	52 (24.1%)
	Item: to what extent are you able to carry out your everyday physical activities such as walking, climbing stairs, carrying groceries, or moving a chair?	Moderately	63 (29.2)
		A little	50 (23.1%)
		Not at all	20 (9.3%)
Emotional problems	PROMIS Global Health – emotional problems item (Hays et al., 2009)	Never	6 (2.8%)
		Rarely	33 (15.3%)
	Item: in the past 7 days, how often have you been bothered by emotional problems such as feeling anxious, depressed, or irritable?	Sometimes	81 (37.5%)
		Often	74 (34.3%)
		Always	21 (9.7%)
Fatigue	PROMIS global health (Hays et al., 2009)	None	2 (0.9%)
		Mild	27 (12.5%)
	Item: in the past 7 days, how would you rate your fatigue on average?	Moderate	92 (42.6%)
		Severe	68 (31.5%)
		Very severe	27 (12.5%)
Pain	PROMIS Global Health (Hays et al., 2009).	Mean	6.12
	Item: in the past 7 days, how would you rate your pain on average?	(SD)	(2.65)
	(0–10 scale reversed scored so 0 = worst pain)	Range	0–10
Cognitive–communication skill	8 items selected from the Neuro-QOL item bank. All items ask how much difficulty the subject has with tasks related to memory, reading, writing, and problem solvinga	Mean	26.8
		(SD)	(6.63)
		Range	8–40
		Possible range	8–40
		High scores are better
Speech severity	Cedarbaum et al. (1999)	Normal	117 (54.2%)
		Sounds different but people understand me	37 (17.1%)
		Sometimes have to repeat words to be understood	59 (27.3%)
		Use gestures, writing or drawing to help people understand my speech	2 (0.9%)
		Not understandable	0

Note: Where totals do not add to 100%, the remainder are missing data not included to save space.

^aThe Neuro-QOL items were chosen and used with permission prior to publication of the final Neuro-QOL item banks. The specific items used are available from the authors.