Table 1.
Measures Administered
| MEASURE | DESCRIPTION | COMPLETED BY |
APPROXIMATE TIME TO COMPLETE (minutes) |
|---|---|---|---|
| Burden & Benefit Scale11 | Measures patient reactions to research participation. | Caregivers and Patients | 3 |
| Demographic Face Sheet | Provides information on child’s age, race, diagnosis and date of diagnosis, as well as if the child has a psychiatric diagnosis or learning disability. This form also collects information on household income, relationship of the caregiver to the child. | Caregivers | 3 |
| Distress Thermometer26 | Patients rate their emotional distress on a visual analog scale. The screen also includes a problem checklist where raters < age 12 indicate reasons for distress from 5 separate domains. | Caregivers and Patients | 5 |
| Brief Symptom Inventory27 | Identifies psychological distress and psychiatric disorders. | Caregivers and Patients aged 18–21 | 4 |
| Children’s Depression Inventory28 | Identifies psychological distress and psychiatric disorders. | Patients aged 7–17 | 4 |
| State Anxiety Inventory / State Inventory for Children29 | Assesses anxiety and tension. | Caregivers and Patients | 5 |
| Wong-Baker FACES Pain Scale30 | Assesses pain. | Caregivers and Patients | 1 |
| Childhood Fatigue Scales31 | Measures fatigue in pediatric oncology patients. | Caregivers and Patients | 5 |