Table 5. Selected patient verbatim statements, classified as emotional impacts, by theme.a .
| Themes/subthemes | Verbatim statements |
|---|---|
| Feelings | Definition: states of emotional response |
| Self-conscious, shamed | “I am very ashamed of the look, you know, like just people looking at me.” |
| Embarrassed | “The flaking causes a lot of the embarrassment. And a lot of times it's just easier to stay home than to go out.” |
| Alone, lonely, isolated | “You feel like you're a leper. No one wants to get next to you. No one wants to touch you.” |
| Unattractive, unappealing (to self and others) | “I guess the things that go hand-in-hand is ugliness, the confidence killer of it, the stares, and other people's questions.” |
| Frustrated | “That's all I've ever felt since I got psoriasis, was frustrated. Frustrated that there wasn't an answer, there wasn't a solution, that no one I knew had it. No one my age had it.” |
| Worried, stressed | “I was always worried that they would think that what I had, that I had some kind of a rash, that I had something contagious, that it was poison ivy or something.” |
| Angry | “It does make me mad, the psoriasis, because why did I get it? Why did I have to have it?” |
| Sense of self | Definition: general traits, characteristics or personality |
| Low self-esteem, self-confidence, self-worth | “I think it kind of molded me into this really insecure person.” |
| Withdrawn, introverted, shy | “It made me self-conscious about myself. And I became shy and withdrawn. I really didn't want to be around people. I was embarrassed because of those symptoms.” |
| Mood | Definition: consistent and persistent mood disturbance |
| Sad, hopeless, helpless, depressed | “The depression affects my whole family, not just me. I cry a lot and my daughter sees that, I don't like her seeing that.” |
| Anxious | “But the appearance, I couldn't conceal that from others. And it just makes you so anxious to just hurry and get out of the line or hurry and get covered up or to get out of that situation so that you can calm down.” |
aA comprehensive list of patient statements for each impact area are presented in supplementary materials.