Table 1.
Baseline demographic and disease characteristics*
| N | Value | |
|---|---|---|
| Age at onset, years | 923 | 6.7 [2.8–10.7] |
| Female, n (%) | 923 | 581 (63) |
| Delay to rheumatologist, months | 920 | 5.6 [2.9–12.0] |
| Active joint count | 905 | 2 [1–4] |
| Limited joint count | 905 | 1 [0–3] |
| Physician global assessment, mm | 713 | 29 [15–51] |
| ILAR subtype, n (%) | 842 | |
| Systemic arthritis | 48 (5.7) | |
| Persistent oligoarthritis | 430 (51.1) | |
| Extended oligoarthritis | 18 (2.1) | |
| RF‐negative polyarthritis | 145 (17.2) | |
| RF‐positive polyarthritis | 29 (3.4) | |
| Enthesitis‐related arthritis | 44 (5.2) | |
| Psoriatic arthritis | 44 (5.2) | |
| Unclassifiable | 50 (5.9) | |
| Other inflammatory arthritis | 34 (4.0) | |
| JADAS‐71 | 304 | 11.2 [5.8–17.2] |
| JADAS3‐71 | 477 | 8.8 [4.5–14.0] |
| C‐HAQ score | 601 | 0.625 [0.125–1.375] |
| VAS pain, mm | 589 | 30 [8–58] |
| VAS general evaluation, mm | 582 | 21 [4–50] |
| IPQ, mean ± SD | ||
| Timeline (range 5–30) | 225 | 17.1 ± 4.2 |
| Consequences (range 0–30) | 225 | 18.4 ± 5.0 |
| Personal control (range 5–25) | 225 | 18.7 ± 4.4 |
| Treatment control (range 5–25) | 225 | 18.6 ± 2.9 |
| Illness coherence (range 5–25) | 225 | 15.7 ± 4.5 |
| Timeline cyclical (range 5–20) | 225 | 12.7 ± 2.9 |
| Emotional representations (range 5–30) | 225 | 18.7 ± 5.4 |
| CHQ | ||
| Physical functioning | 353 | 33 [6–67] |
| Role/social limitations–emotional/behavioral | 351 | 0 [0–56] |
| Role/social limitations–physical | 352 | 33 [0–67] |
| Bodily pain/discomfort | 334 | 60 [30–80] |
| Behavior | 334 | 28 [15–44] |
| Mental health | 333 | 25 [15–40] |
| Self‐esteem | 334 | 29 [13–46] |
| Parental impact, emotional | 354 | 33 [17–67] |
| Parental impact, time | 352 | 11 [0–33] |
| Family activities | 354 | 25 [8–46] |
| Family cohesion | 354 | 15 [15–40] |
Values are the median [interquartile range], unless otherwise indicated. ILAR = International League Against Rheumatism; RF = rheumatoid factor; JADAS‐71 = Juvenile Arthritis Disease Activity Score based on 71 joint count; JADAS3‐71 = JADAS‐71 without erythrocyte sedimentation rate; C‐HAQ = Childhood Health Assessment Questionnaire; VAS = visual analog scale; IPQ = Illness Perception Questionnaire; CHQ = Child Health Questionnaire.