Table 1.
Characteristic | Approached (n=100) | Completed V1a (pretest counseling) (n=61) | Completed V2b (test disclosure) (n=41) | |
Age in years, mean (SD, range) | 54 (14, 23-87) | 54 (13, 26-85) | 56 (13, 28-85) | |
Self-reported race/ethnicity, n (%) |
|
|
|
|
|
White | 74 (74.0) | 47 (77)j | 33 (80)j |
|
African American/black | 12 (12.0) | 8 (13) | 4 (10) |
|
Hispanic/Latino/other | 14 (14.0) | 6 (10) | 4 (10) |
Gender (female), n (%) | 98 (98.0) | 60 (98) | 40 (98) | |
Community site, n (%) |
|
|
|
|
|
Kennedy Health System (NJ) | 26 (26.0) | 14 (23) | 7 (17) |
|
Community Medical Center (NJ) | 47 (47.0) | 29 (48) | 17 (42) |
|
Bayhealth Medical Center (DE) | 27 (27.0) | 18 (30)j | 17 (42)j |
Education c , n (%) |
|
|
|
|
|
High school or less | 18/81 (22) | 15 (25) | 11 (27) |
|
Some college/associates | 25/81 (31) | 16 (26) | 11 (27) |
|
College graduate | 29/81 (36) | 24 (39) | 16 (39) |
|
Graduate or postgraduate | 9/81 (11) | 6 (10) | 3 (7) |
Marital statusd (marriede), n (%) | 49/80 (61) | 39 (64) | 25 (61) | |
Personal history of cancerc (yes), n (%) | 41/81 (51) | 33 (54)j | 28 (68)j | |
Known mutation in familyc (yes), n (%) | 7/81 (9) | 5 (8) | 3 (7) | |
Number of FDRsf/SDRsg with cancer, mean (SD) | N/Ah | 4.18 (2.74) | 3.80 (2.62) | |
Genetic testing, n (%) |
|
|
|
|
|
BRCA1/2 | N/A | N/A | 38 (93) |
|
Lynch syndrome | N/A | N/A | 2 (5) |
|
Both | N/A | N/A | 1 (2) |
Test result, n (%) |
|
|
|
|
|
Uninformative/negative | N/A | N/A | 35 (85) |
|
Positive | N/A | N/A | 4 (10) |
|
True negative | N/A | N/A | 2 (5) |
|
VUSi | N/A | N/A | 0 (0) |
aV1: visit 1.
bV2: visit 2.
cOf the total approached participants, 19 were without available information.
dOf the total approached participants, 20 were without available information.
eIncludes domestic partnership.
fFDR: first-degree relative.
gSDR: second-degree relative.
hN/A: not applicable.
iVUS: variant of uncertain significance.
j P<.05.