Table 1.
Self-reported respondent characteristics by race among adolescents and young adults with moderate or severe hemophilia (n = 80)
| Participant characteristic | Non-whitea, n (%) (n = 19) | White, n (%) (n = 61) | Fisher’s p value | ||
|---|---|---|---|---|---|
| Age | .80 | ||||
| 13–17 | 9 | (47) | 32 | (52) | |
| 18–25 | 10 | (53) | 29 | (48) | |
| Gender | .24 | ||||
| Male | 18 | (95) | 61 | (100) | |
| Female | 1 | (5) | 0 | (0) | |
| Ethnicity | 1.0 | ||||
| Hispanic | 2 | (14) | 8 | (12) | |
| Non-Hispanic | 17 | (86) | 53 | (88) | |
| Health Insuranceb | <.001 | ||||
| Medicaid or VA onlyc | 12 | (63) | 12 | (20) | |
| Commercial only | 3 | (16) | 32 | (52) | |
| Both | 0 | (0) | 7 | (11) | |
| Insured—type unknown | 1 | (5) | 8 | (13) | |
| Uninsured | 3 | (16) | 0 | (0) | |
| Mother’s education | .78 | ||||
| Less than bachelor’s | 14 | (74) | 42 | (69) | |
| Bachelor’s or higher | 5 | (26) | 19 | (31) | |
| Father’s education | .16 | ||||
| Less than bachelor’s | 16 | (84) | 39 | (64) | |
| Bachelor’s or higher | 3 | (16) | 22 | (36) | |
| Bleeding disorder | .19 | ||||
| Hemophilia A | 19 | (100) | 54 | (89) | |
| Hemophilia B | 0 | (0) | 7 | (11) | |
| Severity | 1.0 | ||||
| Moderate | 1 | (5) | 6 | (10) | |
| Severe | 18 | (95) | 55 | (90) | |
| Inhibitor development | <.01 | ||||
| Never | 5 | (26) | 38 | (62) | |
| Ever | 14 | (74) | 23 | (38) | |
| Treatment regimen | .72 | ||||
| On-demand | 3 | (16) | 8 | (13) | |
| Prophylaxis | 16 | (84) | 53 | (87) | |
aMost (73 %) non-white respondents were black or African-American, 14 % were mixed race, 9 % were Asian, and 5 % were American Indian or Alaskan Native
b n = 78, two patients answered “Don’t Know” to whether or not they had health insurance and were not included
cOnly two patients had VA only insurance; the others had Medicaid only