Table 1.
Variables Registered in the Diabetes Pediatric Registries in the 4 Nordic Countries.
| Denmark |
Iceland |
Norway |
Sweden |
|||||
|---|---|---|---|---|---|---|---|---|
| Variable | Included in the registry, yes/no | Time of registration and frequency | Included in the registry, yes/no | Time of registration and frequency | Included in the registry, yes/no | Time of registration and frequency | Included in the registry, yes/no | Time of registration and frequency |
| Type of diabetes | Yes | At onset | Yes | At onset | Yes | At onset | Yes | At onset |
| HbA1c | Yes | Annually | Yes | Every visit | Yes | Annually | Yes | Every visit |
| Insulin dose, U/kg | Yes | Annually | No | Yes | Annually | Yes | Every visit | |
| CSII | Yes | Annually | Yes | Every visit | Yes | Annually | Yes | Every visit |
| Number of insulin doses | Yes | Annually | No | Yes | Annually | Yes | Every visit | |
| DKA | Yes | Annually | Yes | Every visit | Yes | Annually | Yes | Every visit |
| Severe hypoglycemia | Yes | Annually | Yes | Every visit | Yes | Annually | Yes | Every visit |
| BMI-SDS | Yes | Annually | No | Can be calculated by Swedish standards | Yes | Annually | Yes | Every visit |
| BP | Yes | Annually | Annually | Yes | Annually | Yes | Every visit | |
| Fundus photography | Yes | Every third year from the 12th year | Yes | Every second year above 15 years of age | No | Annually: above 11 or 9 years of age, after 2 and 5 years of diabetes duration resp. | Yes | Every second year above 10 years of age |
| U-Albumin | Yes | Annually after 3 years of duration | Yes | Annually after 18 months of duration | Yes | Annually | Yes | Annually after 18 months of duration |
| Lipids | No | No | Not regularly | Yes | Annually | Yes | Annually | |
| Puberty | Yes | Annually >7 years of age | Yes | Annually ≥10 years of age | Yes | Annually | Yes | Annually ≥10 years of age |
| Ethnicity | Yes | At onset | Yes | At onset or at the first annual examination | Yes | At onset or at the first annual examination | Yes | At onset |
| Physical activity | No | No | No | Yes | Every visit | |||
| Smoking | Yes | Annually | No | Yes | Annually | Yes | Every visit | |
| Coeliac disease morbidity | Yes | Annually | Yes | At onset | Yes | Annually | Yes | Every second year |
| Thyroid morbidity | Yes | Ad hoc | Yes | Yearly | Yes | Annually | Yes | Every second year |
| HRQOL | No | No | No | No | ||||
BMI-SDS, body mass index standard deviation score; BP, blood pressure; DKA, diabetic ketoacidosis; HRQOL, health-related quality of life; CSII, subcutaneous continuous insulin infusion.