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. 2015 Nov 1;18(3):445–454. doi: 10.1093/neuonc/nov187

Table 1.

Key results of the pre-launch public awareness baseline surveys (February 2011) and post-launch follow-up survey (September/October 2011)

Baseline Survey (n = 647) Follow-up Survey (n = 648)
Sources of medical information if worried that a child might have serious condition
  • GP: 64%

  • NHS Direct telephone helpline: 43%

  • NHS Direct website: 32%

  • Friends/relatives/parents/guardian: 42%

  • GP: 56%

  • NHS Direct telephone helpline: 36%

  • NHS Direct website: 27%

  • Friends/relatives/parents/guardian: 40%

Length of time before public would make an appointment to discuss high-risk symptoms with a doctor
(a list of high-risk symptoms based on HeadSmart symptom card was provided)
  • Abnormal eye movements, behavior change/lethargy, and gait or balance disturbance were not deemed as urgent as other symptoms.

  • Over 70% of respondents would seek medical advice on all symptoms except delayed puberty and/or slow growth within 2 weeks.

  • Abnormal eye movements, behavior change/lethargy, and gait or balance disturbance were not deemed as urgent as other symptoms.

  • Over 70% of respondents would seek medical advice on all symptoms except delayed puberty and/or slow growth within 2 weeks.

Percentage of public that are aware of the number of brain tumor incident cases
(informed that it is 500 cases a year)
  • Higher than expected: 51%

  • About what they expected: 33%

  • Less than expected: 16%

NA
Percentage of public that were aware of warning signs of brain tumors High awareness (identified by >80% of respondents)
Vomiting, headaches, seizures, and vision problems
High awareness (identified by >80% of respondents)
Vomiting, headaches, seizures, and vision problems
50%–79%
Deterioration in balance and behavior change
50%–79%
Deterioration in balance and behavior change
Low awareness (identified by <50% of respondents)
Abnormal head position, 46%
Lethargy, 45%
Delayed puberty or slow growth,14%
Excessive thirst, 12%
Passing a lot of urine, 11%
Low awareness (identified by <50% of respondents)
Abnormal head position, 44%
Lethargy, 46%
Passing a lot of urine, 9%
Excessive thirst, 13%
Early/delayed puberty or slow growth, 13%