Table 1.
Respondent characteristics
| MF (n = 207) | PV (n = 380) | ET (n = 226) | |
|---|---|---|---|
| Median (range) age, y | 66 (28–90) | 64 (25–94) | 62 (23–87) |
| Women, n (%) | 112 (54) | 237 (62) | 163 (72) |
| Race,a n (%) | |||
| White | 203 (98) | 371 (98) | 221 (98) |
| Black or African American | 2 (1) | 3 (1) | 2 (1) |
| Asian | 1 (<1) | 4 (1) | 2 (1) |
| Unknown | 1 (<1) | 2 (1) | 1 (<1) |
| Median (range) disease duration since diagnosis, y | 4 (0–36) | 7 (0–61) | 7 (0–36) |
| Calculated prognostic risk score, n (%) | |||
| Low | 9 (4) | 26 (7) | 46 (20) |
| Intermediate-1 | 34 (16) | 77 (20) | 86 (38) |
| Intermediate-2 | 84 (41) | 62 (16) | NAb |
| High | 63 (30) | 101 (27) | 35 (16) |
| Missingc | 17 (8) | 114 (30) | 59 (26) |
| Primary medical insurance, n (%) | |||
| Medicare | 94 (45) | 157 (41) | 84 (38) |
| Group commercial insurance | 80 (39) | 169 (45) | 103 (46) |
| Individual commercial insurance | 14 (7) | 25 (7) | 18 (8) |
| Medicaid or state assistance | 1 (<1) | 3 (1) | 1 (<1) |
| Tricare or VA benefit | 6 (3) | 4 (1) | 8 (4) |
| Medicare and group insurance through current/former employer | 3 (1) | 3 (1) | 2 (1) |
| Medicare and secondary/supplemental insurance | 3 (1) | 2 (1) | 2 (1) |
| Other | 5 (2) | 13 (3) | 5 (2) |
| Unknown | 1 (<1) | 2 (1) | 0 |
| Education, n (%) | |||
| No high school | 1 (<1) | 0 | 0 |
| Some high school | 0 | 1 (<1) | 1 (<1) |
| High school graduate | 17 (8) | 33 (9) | 20 (9) |
| Technical postsecondary | 7 (3) | 11 (3) | 11 (5) |
| Some college | 48 (23) | 88 (23) | 63 (28) |
| Four-year college graduate | 67 (32) | 116 (31) | 58 (26) |
| Postgraduate degree | 67 (32) | 131 (35) | 73 (32) |
| Household income, n (%) | |||
| ≤$15,000 | 6 (3) | 12 (3) | 9 (4) |
| 15,001–$25,000 | 9 (4) | 21 (6) | 9 (4) |
| 25,001–$35,000 | 19 (9) | 22 (6) | 11 (5) |
| 35,001–$50,000 | 17 (8) | 37 (10) | 22 (10) |
| 50,001–$75,000 | 34 (16) | 62 (16) | 35 (16) |
| 75,001–$100,000 | 47 (23) | 53 (14) | 60 (27) |
| >$100,000 | 62 (30) | 145 (38) | 67 (30) |
| Unknown | 13 (6) | 28 (7) | 13 (6) |
ET = essential thrombocythemia; MF = myelofibrosis; NA = not applicable; PV = polycythemia vera; VA = Veterans Affairs
aRespondents were allowed to give multiple answers regarding race; this table records only the first answer given by each respondent
bRespondents with ET could receive prognostic risk scores of low, intermediate, or high; intermediate was not divided into intermediate-1 and -2
cCalculated prognostic risk score missing because of unknown lab values for risk categorization