Table IV.

Study Outcome Measures Derived from the SCKnowIQ Measure

Outcome Measure	Synopsis
Knowledge	18 items on SCD and SCT genetic inheritance (4 hypothetical items; 3 participant-specific items), SCD etiology and risks, and parenting options for people with SCD or SCT. Multiple choice response options with one correct answer scored as 0 = not correct or 1= correct and summed to create a total knowledge score that ranges from 0 to 18. The Cronbach’s alpha in this sample ranged from .70 to .71. Test-retest reliability in the e-Book group was .66.
Reproductive Health Intention	8 items on intention to avoid having children with SCD or SCT, to have a child without SCD or affected by SCD, to abort a pregnancy due to health concern or to prevent SCD or SCT, to use a variety of advanced reproductive technologies, or to seek other non-childbearing options (e.g., foster, adopt). Response options ranged from 0 (not at all likely) to 4 (extremely likely); the total intention score ranges from 0 to 32. The Cronbach’s alphas in this sample ranged from .60 to .69.
Reproductive Behavior	10 items on behaviors engaged in ever/during the past 6 months (baseline) or during the past 6 months (6, 12, 18, 24 mo posttest) to implement the parenting plan. Behaviors include frequency using birth control, talking with partner, prenatal testing, adopting/fostering a child, seeking other options such as advanced reproductive technologies, and agreeing or disagreeing that the individual is doing all things to help avoid having a child with SCD or SCT. Response options were descriptive for each item, but coded based on consistency with the parenting plan. Codes were binary for nine items (0 inconsistent with parenting plan or 1 consistent with parenting plan) and tertiary for one item that was coded as 0 inconsistent, 0.5 somewhat consistent, 1 consistent with the parenting plan. Total behavior outcome score ranges from 0 to 10. The Cronbach’s alphas in this sample ranged from .62 to .67.