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. Author manuscript; available in PMC: 2016 Mar 3.
Published in final edited form as: Ann Intern Med. 2015 May 19;162(10):690–696. doi: 10.7326/M15-0166

Table 4.

Preferences if Obtaining Permission Would Make Research Too Difficult*

Response Research Scenario

Medical Record Review Randomization (Hypertension) Randomization (Serious Condition)
Of those initially preferring “Discussion plus written permission”: “If getting written permission or consent would make this research too difficult to carry out, how would you prefer to be notified about this research?”

 Respondents, n 558 517 574

 No notification, n (%) 15 (2.7) 5 (1.0) 11 (1.9)

 General information, n (%) 84 (15.1) 64 (12.4) 48 (8.4)

 Discussion plus verbal permission, n (%) 362 (64.9) 322 (62.3) 344 (59.9)

 Prefer research not be conducted, n (%) 97 (17.4) 126 (24.4) 171 (29.8)

Of those preferring “Discussion plus verbal permission” (after initially preferring written permission): “If getting verbal permission would make this research too difficult to carry out, how would you prefer to be notified about this research?”
 Respondents, n 362 322 344

 No notification, n (%) 14 (3.8) 12 (3.7) 5 (1.5)

 General information, n (%) 250 (69.1) 209 (64.9) 226 (65.7)

 Prefer research not be conducted, n (%) 98 (27.1) 101 (31.4) 113 (32.9)

Of those initially preferring “Discussion plus verbal permission”: “If getting verbal permission would make this research too difficult to carry out, how would you prefer to be notified about this research?”
 Respondents, n 266 295 307

 No notification, n (%) 27 (10.2) 22 (7.5) 20 (6.5)

 General information, n (%) 213 (80.1) 242 (82.0) 243 (79.2)

 Prefer research not be conducted, n (%) 26 (9.8) 31 (10.5) 44 (14.3)
*

Percentages may not sum to 100 due to rounding.