Table 3.

Additional Quotes for Barriers to Participation in Tissue Research

Additional Quotes for Barriers to Participation in Tissue Research
Understanding tissue research
“ {Health Research} information isn’t floating around maybe like {the research institution} thinks it’s floating around out there in the black community.“
Mistrust of medical community and research practices
“ Just the word research in our community is like that’s a bad apple, you know, going back to Tuskegee and all of that and not even-- you don’t even really have to go back that far…that’s going on right now…”
“We for years, you know, we’re not meant to rely on the healthcare industry to have our best interests at heart. And that history is dying very slowly. There may be generations behind us that don’t remember the Tuskegee experiments and things like that.”
“Theoretically everybody’s supposed to benefit, but let’s be real. The ones with the money actually benefit from it.”
“{I} neglected going in for even healthcare from a doctor because {I} was not able to trust.”
Unwillingness to participate in tissue research
“Well how are you going to get these tissues? Are you going to cut me? What are you talking about here? If you’re talking about cutting me, forget about it.”