Table 4.

Additional Quotes for Strategies to Improve Tissue Research Participation

Additional Quotes for Strategies to Improve Tissue Research Participation
Addressing knowledge deficits
“I don't know what you can do except go to places that they are and have it there. Like this. Go to a black man's job…or get a group of men together. See if you can do it at their lunch time…”
“Putting that information out there to them will really make them understand better what their risks are and how they can alleviate themselves.”
“So I think if you made it available on radio, TV, like where there’s social media that is available for the African American community.”
Mistrust of research recruitment
“You have to have the manners of approaching it the right way with the right words. Professionalism would mean {the difference} between me doing it and me not doing it.”
“… that’s why I asked you well, who was funding this research? Because on the surface it may look like one thing but underneath that you never know. So you don’t know if you’re doing something to help mankind or to hurt mankind.”
“Well how are you going to get these tissues? Are you going to cut me? What are you talking about here? If you’re talking about cutting me, forget about it.”
Willingness to participate in tissue research
“I don't have a problem participating in {research} especially with health problems that I done had, I see that it's beneficial to other people, hopefully, since I've been diagnosed with cancer too so I'm hoping that people participate in it to keep other people from going through what I've had to go through.”
“My first thought is if I can help somebody I wouldn’t mind helping a person if they need something that I have that they can use, I wouldn’t mind helping them. And the same process, I might need some help from somebody.”
“Before I was diagnosed with cancer I would have gave it a second thought. ‘I’m not giving you tissue, don’t even come close to me.’ But now that I’ve been personally affected by that then I see the need for it.”
“And so yeah, I’m more receptive to looking at those issues than I would have been 30 years ago. Thirty years ago I would have been saying, ‘Catch you later’. And then later finally came for me. So now I gladly participate in those kinds of studies.”