Table 2.
Perceived caregiver burden (EDIZ)
| Measurement (n) | Model 1 | Model 2 | Model 3 | Model 4 | ||||
|---|---|---|---|---|---|---|---|---|
| Average (range, sd) | At start of case management (T1) (n = 116) | 1 year after start of case management (T2) (n = 48) | At start of case management (T1) (n = 121) | 1 year after start of case management (T2) (n = 50) | At start of case management (T1) (n = 119) | 1 year after start of case Management (T2) (n = 48) | At start of case management (T1) (n = 108 | 1 year after start of case management (T2) (n = 59) |
| My relative’s situation gives me hardly any room to live my own life | 3.1 (1–5; 0.09) | 3.1 (1–5; 0.13) | 3.3 (1–5; 0.09) | 3.2 (1–5; 0.13) | 3.3 (1–5; 0.09) | 3.4 (1–5; 0.13) | 3.1 (1–5; 0.09) | 3.1 (1–5; 0.12) |
| It is not easy to combine the responsibility for my relative and the responsibility for my work or family | 3.1 (1–5; 0.09) | 3.3 (1–5; 0.14) | 3.2 (1–5; 0.09) | 3.4 (1–5; 0.14) | 3.4 (1–5; 0.09) | 3.3 (1–5; 0.14) | 3.3 (1–5; 0.09) | 3.4 (1–5; 0.1.3) |
| I am letting down other people because of my involvement with my relative | 3.7 (1–5; 0.08) | 3.9 (1–5; 0.11) | 3.7 (1–5; 0.08) | 3.6 (1–5; 0.11) | 3.9 (1–5; 0.08) | 3.8 (1–5; 0.11) | 3.7 (1–5; 0.09) | 3.7 (1–5; 0.11) |
| I always have to be prepared for my relative | 2.8 (1–5; 0.09) | 2.9 (1–5; 0.13) | 2.9 (1–5; 0.09) | 3.0 (1–5; 0.12) | 3.0 (1–5; 0.09) | 3.0 (1–5; 0.12) | (1–5; 0.09) | 2.6 (1–5; 0.11) |
| My independence is at stake | 3.4 (1–5; 0.08) | 3.5 (1–5; 0.12) | 3.5 (1–5; 0.08) | 3.4 (1–5; 0.12) | 3.7 (1–5; 0.08) | 3.8 (1–5; 0.12) | 3.4 (1–5; 0.09) | 3.5 (1–5; 0.12) |
| My relative’s situation needs my constant attention | 2.7 (1–5; 0.09) | 2.6 (1–5; 0.12) | 2.7 (1–5; 0.08) | 2.9 (1–5; 0.11) | 2.8 (1–5; 0.09) | 2.7 (1–5; 0.12) | 2.5 (1–5; 0.09) | 2.6 (1–5; 0.12) |
| My involvement with my relative causes conflicts at home and/or at my work* | 3.9 (1–5; 0.08) | 4.1 (1–5; 0.11) | 3.9 (1–5; 0.08) | 4.0 (1–5; 0.11) | 4.1 (1–5; 0,08) | 3.9 (1–5; 0.11) | 3.8 (1–5; 0.08) | 3.9 (1–5; 0.11) |
| My relative’s situation is never out of my mind | 2.5 (1–5; 0.11) | 2.5 (1–5; 0.16) | 2.7 (1–5; 0.12) | 2.7 (1–5; 0.16) | 2.6 (1–5; 0.12) | 2.7 (1–5; 0.16) | 2.6 (1–5; 0.12) | 2.5 (1–5; 0.15) |
| My relative’s situation puts me under a lot of pressure | 3.0 (1–5; 0.09) | 3.1 (1–5; 0.12) | 3.1 (−15; 0.09) | 3.1 (1–5; 0.12) | 3.2 (1–5; 0.09) | 3.2 (1–5; 0.12) | 3.0 (1–5; 0.09) | 3.1 (1–5; 0.11) |
| Total score for EDIZ** | 3.6 (0–9; 0.23) | 3.9 (0–9; 0.31) | 3.9 (0–9; 0.23) | 3.9 (0–9; 0.30) | 4.1 (0–9; 0.23) | 4.2 (0–9; 0.31) | 3.5 (0–9; 0.24) | 4.0 (0–9; 0.29) |
* Differences between the score of T1 and T2 between model 1 and model 3 are statistically significant (chi-square =5.28, p < 0.05)
** Differences between the scores of T1 and T2 are not statistically significant (chi-square, p < 0.05)