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. Author manuscript; available in PMC: 2016 Mar 17.
Published in final edited form as: JAMA Intern Med. 2015 Jul;175(7):1213–1221. doi: 10.1001/jamainternmed.2015.1679

Table 1.

Small Pilot and Preintervention-Postintervention Studies

Source Intervention and Study Population Description Follow-up RCT
Decision Making Tools for ACP
Braun et al,23 2006 Booklets on 5 end-of-life topics to be targeted to the elderly NA
Hickman et al,34 2014 Video and web-based interactive education regarding
completion of advance directive
NA
Hossler et al,24 2010 Interactive, computer- based tool on ACP for patients
with ALS
NA
Enguidanos et al,25 2011 Brochure on African Americans and hospice care for
outpatients with chronic illnesses
NA
Schiff et al,26 2009 Booklet on ACP for elderly hospitalized patients NA
Schubart et al,27 2012 Computer-based tool about ACP for elderly outpatients NA
Volandes et al,15 2008 Two-minute video showing features of advanced
dementia and goals of care for elderly Latino outpatients
Volandes et al,35 2009;
Volandes et al,36 2009; and
Volandes et al,37 2011
Decision Making Tools to Support Current Choices
Brundage et al,28 2000 Booklet with descriptions of treatment options for
advanced NSCLC and adverse effects
NA
Cox et al,7 2012 Ten-page booklet describing chronic critical illness to aid
families of patients in the ICU
Study in progress and
recruiting, https://clinicaltrials.gov
Dales et al,29 1999 Booklet with accompanying audio portion about MV in
severe COPD
NA
Deep et al,16 2010 Two-minute video showing features of advanced
dementia and goals of care for families of patients with
advanced dementia
Volandes et al,35 2009;
Volandes et al,36 2009; and
Volandes et al,37 2011
Leighl et al,17 2008 Twenty-five–page booklet on lung cancer treatment and
outcomes for patients with advanced NSCLC
Leighl et al,38 2011
Matlock et al,30 2014 Booklet on palliative care, including importance of ACP
and clarifying goals and wishes for inpatients undergoing
evaluation by a palliative care team
NA
McCannon et al,18 2012 Three-minute video on CPR and mechanical ventilation
for families of critically ill patients
Epstein et al,39 2013
Mitchell et al,19 2001 Audiobooklet addressing feeding options for families of
patients with advanced dementia
Hanson et al,40 2011
Sepucha et al,31 2009 Thirty-minute video with booklet that addresses living
with metastatic breast cancer
NA
Smith et al,32 2011 Printed booklet with review of diagnoses, prognosis,
treatment options, and adverse effects for advanced
malignant disease
NA
Sudore et al,20 2014 Easy-to-read, culturally appropriate, interactive, website
that includes a 5-step ACP process and the use of how-to
videos that model ACP behavior. The program is focused
on teaching elderly patients how to identify what is most
important in life, how to communicate that with others,
and how make informed medical decisions.
Study in progress and
recruiting, https://clinicaltrials.gov
Snyder et al,21 2013 Printed booklet written at sixth-grade level on advanced
dementia and feeding options for families of these
patients
Hanson et al,40 2011
Volandes et al,22 2012 Six-minute video depicting the following 3 possible
levels of care: full, limited, or comfort focus for patients
with advanced cancer
El-Jawahri et al,41 2010;
Volandes et al,42 2012
Wilson et al,33 2005 Booklet with audio portion describing COPD and MV for
Canadian outpatients with severe COPD
NA

Abbreviations: ACP, advance care planning; ALS, amyotrophic lateral sclerosis; COPD, chronic obstructive pulmonary disease; CPR, cardiopulmonary resuscitation; ICU, intensive care unit; MV, manual ventilation; NA, not applicable; NSCLC, non–small cell lung cancer; RCT, randomized clinical trial.