Table 1.
Source | Intervention and Study Population Description | Follow-up RCT |
---|---|---|
Decision Making Tools for ACP | ||
Braun et al,23 2006 | Booklets on 5 end-of-life topics to be targeted to the elderly | NA |
Hickman et al,34 2014 | Video and web-based interactive education regarding completion of advance directive |
NA |
Hossler et al,24 2010 | Interactive, computer- based tool on ACP for patients with ALS |
NA |
Enguidanos et al,25 2011 | Brochure on African Americans and hospice care for outpatients with chronic illnesses |
NA |
Schiff et al,26 2009 | Booklet on ACP for elderly hospitalized patients | NA |
Schubart et al,27 2012 | Computer-based tool about ACP for elderly outpatients | NA |
Volandes et al,15 2008 | Two-minute video showing features of advanced dementia and goals of care for elderly Latino outpatients |
Volandes et al,35 2009; Volandes et al,36 2009; and Volandes et al,37 2011 |
Decision Making Tools to Support Current Choices | ||
Brundage et al,28 2000 | Booklet with descriptions of treatment options for advanced NSCLC and adverse effects |
NA |
Cox et al,7 2012 | Ten-page booklet describing chronic critical illness to aid families of patients in the ICU |
Study in progress and recruiting, https://clinicaltrials.gov |
Dales et al,29 1999 | Booklet with accompanying audio portion about MV in severe COPD |
NA |
Deep et al,16 2010 | Two-minute video showing features of advanced dementia and goals of care for families of patients with advanced dementia |
Volandes et al,35 2009; Volandes et al,36 2009; and Volandes et al,37 2011 |
Leighl et al,17 2008 | Twenty-five–page booklet on lung cancer treatment and outcomes for patients with advanced NSCLC |
Leighl et al,38 2011 |
Matlock et al,30 2014 | Booklet on palliative care, including importance of ACP and clarifying goals and wishes for inpatients undergoing evaluation by a palliative care team |
NA |
McCannon et al,18 2012 | Three-minute video on CPR and mechanical ventilation for families of critically ill patients |
Epstein et al,39 2013 |
Mitchell et al,19 2001 | Audiobooklet addressing feeding options for families of patients with advanced dementia |
Hanson et al,40 2011 |
Sepucha et al,31 2009 | Thirty-minute video with booklet that addresses living with metastatic breast cancer |
NA |
Smith et al,32 2011 | Printed booklet with review of diagnoses, prognosis, treatment options, and adverse effects for advanced malignant disease |
NA |
Sudore et al,20 2014 | Easy-to-read, culturally appropriate, interactive, website that includes a 5-step ACP process and the use of how-to videos that model ACP behavior. The program is focused on teaching elderly patients how to identify what is most important in life, how to communicate that with others, and how make informed medical decisions. |
Study in progress and recruiting, https://clinicaltrials.gov |
Snyder et al,21 2013 | Printed booklet written at sixth-grade level on advanced dementia and feeding options for families of these patients |
Hanson et al,40 2011 |
Volandes et al,22 2012 | Six-minute video depicting the following 3 possible levels of care: full, limited, or comfort focus for patients with advanced cancer |
El-Jawahri et al,41 2010; Volandes et al,42 2012 |
Wilson et al,33 2005 | Booklet with audio portion describing COPD and MV for Canadian outpatients with severe COPD |
NA |
Abbreviations: ACP, advance care planning; ALS, amyotrophic lateral sclerosis; COPD, chronic obstructive pulmonary disease; CPR, cardiopulmonary resuscitation; ICU, intensive care unit; MV, manual ventilation; NA, not applicable; NSCLC, non–small cell lung cancer; RCT, randomized clinical trial.