| 1. Informed consent for donation |
| 1.1 To what extent should parents decide about collection and storage of their child's material? |
| 1.2 Should that be an explicit informed consent or an opt-out? |
| 1.3 Is there a chance of different interests between parents and child? |
| 1.4 Should a child decide on collection and storage of its material itself? |
| 1.5 How should a child's right to withdraw be specified? |
| 1.6 Should there be a child's right to destroy its material? |
| 1.7 Should the child be asked to consent to continuation of storage and use of its material? |
| 1.8 Who should re-contact the child? |
| 1.9 What should be the scope of research with a child's biological material? |
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| 2. Disclosure of individual research findings |
| 2.1 What should be the biobank policy on disclosure of individual findings? |
| 2.2 Is there a possibility of different interests between parents and child regarding (not) to know individual findings? |
| 2.3 At what age is a child capable to decide about disclosure of individual findings? |
| 2.4 Is there a chance to stigmatisation with knowledge about a genetic deviation? |
| 2.5 Should an independent committee advise about disclosure of individual findings? |
