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. 2015 Nov 21;15:341–350. doi: 10.1007/s10689-015-9852-6

Table 1.

Measures

Topic Subcategory Number of items Scoring Alpha Reference Description of questions/examples
1. Sociodemographic characteristics n/a n/a n/a n/a n/a Age, gender, race, specialty
2. Practice characteristics n/a n/a n/a n/a n/a specialty, number and type of gene tests ordered, experience with patient care
3. Information giving a. Topics discussed 5 5-point scale: always to never n/a 5 self-developed statements on how often topics are discussed when providing cancer genetic counselling e.g. ‘Benefits and limitations of close cancer surveillance’
b. Skills perception 13 13–65 (5-point scale: strongly agree to strongly disagree). A higher total score means a more positive perception of one’s info giving skills 0.88 10 items are adapted from an unpublished questionnaire used in the radiotherapy setting and 3 items are based on Keating et al. [4] e.g. ‘I am comfortable discussing hereditary cancer issues with my patients’
4. Decision-making a. Attitude towards patient autonomy 14 See Table 3 Adaptation of the Ideals of Patient Autonomy Scale (Stiggelbout et al 2012) [30]. Our adapted version includes 3 subscales (see Table 3) e.g. ‘If the patient does not want to receive information about risks, the healthcare provider should respect this’
b. Attitude towards responsibility 1 5-point scale (strongly agree to strongly disagree) Self-developed. This item is added to the adapted IPAS in Table 3 ‘It is my responsibility to help a patient make a decision about genetic testing’
c. Skills perception 6 5-point scale (difficult to easy) Self-developed Rate the difficulty of several communication tasks related to decision-making, e.g. ‘involving the patient in the decision’
5. Enabling disease and treatment related behaviors a. Attitude towards responsibility 2 5-point scale (strongly agree to strongly disagree) Self-developed e.g. ‘It is my responsibility to discuss preventive behaviors such as prophylactic surgeries and/or regular cancer screening’
b. Attitude towards future developments 2 5-point scale (strongly agree to strongly disagree) Self-developed and one item based on Shields et al. [5] e.g. ‘I am optimistic that genetic research will lead to significant improvements in the treatment of complex traits’
6. Managing emotions a. Skills perception 7 5-point scale (difficult to easy) Self-developed Rate the difficulty of several communication tasks related to managing emotions, e.g. ‘preparing the patient for negative emotions’
b. Attitude 2 5-point scale (strongly agree to strongly disagree) Self-developed e.g. ‘It is my responsibility to manage emotions that patients experience during genetic counseling’
7. Education a. Received training 7 2 Yes/No, 2 multiple-options, 2 open questions, 1 statement with 5-point scale (strongly agree to strongly disagree) Questions based on Shield et al. [5] and on remarks in Zon et al. [7] e.g. ‘Did you receive specific training about how to communicate with patients about hereditary cancer?’
b. Use of risk models 3 2 Yes/No, 1 multiple-options Questions based on remarks in Zon et al. [7] e.g. ‘Which web-based risk assessment models do you use?’
8. Knowledge a. General perception 4 4-point scale (Very good to very poor) Based on Klitzman et al. [10] e.g. ‘My knowledge about hereditary cancer genetics is…’
b. Confidence 2 5-point scale (Strongly agree to strongly disagree) Based on Shields et al. [5] e.g. ‘I am confident in my ability to interpret a variant genetic test result’
c. Objective knowledge 9 3-point scale (True/False/Do not know) Several items are derived from Erblich et al. [31] and 3 items are derived from a study among FAP-patients of one of the authors (Douma)