Table 8.
Health service experiences
| Number of people | % of Response | |
|---|---|---|
| Number of specialists seen for ongoing care and treatment (n = 730) | ||
| 1–2 | 447 | 61.2 |
| 3–4 | 175 | 24.0 |
| 5–6 | 62 | 8.5 |
| More than 6 | 37 | 5.1 |
| Don’t know | 9 | 1.2 |
| Designated care coordinator (n = 742) | ||
| Yes | 68 | 9.2 |
| No | 648 | 87.4 |
| Don’t know | 26 | 3.5 |
| Distance travelled to see medical specialists (n = 734) | ||
| <20 km | 242 | 33.0 |
| 20–50 km | 204 | 27.8 |
| 51–100 km | 88 | 12.0 |
| 101–200 km | 68 | 9.2 |
| 201–500 km | 59 | 8.0 |
| >500 km | 73 | 9.9 |
| Use telehealth services (n = 741) | ||
| Yes | 29 | 3.9 |
| No | 697 | 94.0 |
| Don’t know | 15 | 2.0 |
| Know of a specialist centre for the condition (n = 738) | ||
| Yes | 163 | 22.1 |
| No | 378 | 51.2 |
| Unsure | 197 | 26.7 |
| Overall satisfaction with adult health services (n = 674) | ||
| Very satisfied | 70 | 10.4 |
| Satisfied | 179 | 26.6 |
| Partly satisfied and partly dissatisfied | 255 | 37.8 |
| Dissatisfied | 84 | 12.5 |
| Very dissatisfied | 86 | 12.7 |
| Had ever used paediatric services (n = 746) | ||
| Yes | 115 | 15.4 |
| No | 606 | 81.2 |
| Don’t know | 25 | 3.4 |
| Overall satisfaction with paediatric health servicesa (n = 114) | ||
| Very satisfied | 26 | 22.8 |
| Satisfied | 39 | 34.2 |
| Partly satisfied and partly dissatisfied | 37 | 32.5 |
| Dissatisfied | 6 | 5.3 |
| Very dissatisfied | 6 | 5.3 |
| Satisfied with time between last paediatric and first adult visita (n = 103) | ||
| Yes | 51 | 49.5 |
| No | 26 | 25.2 |
| Don’t know | 26 | 25.2 |
| Problems in transition from paediatric to adult servicesa (n = 108) | ||
| Yes | 57 | 52.8 |
| No | 38 | 35.2 |
| Don’t know | 13 | 12.0 |
aAmong respondents who had ever used paediatric services (n = 115)