. Author manuscript; available in PMC: 2016 Mar 28.

Published in final edited form as: Am J Med Genet C Semin Med Genet. 2003 May 15;119C(1):51–59. doi: 10.1002/ajmg.c.10006

TABLE I.

Experiences With Disclosure and Confidentiality^⋆

Text of question	CF	SCD	DM	HIV	BC-A	BC-AR	CC-A	CC-AR	Total
Have you ever discussed confidentiality with your healthcare provider? (n = 591)^a	17.7	24.7	16.5	45.9	24.0	24.4	15.2	18.0	24.2
Have you ever signed any documents regarding the confidentiality of your medical records? (n = 573)^a	74.8	51.0	65.4	84.9	66.0	68.9	56.5	60.0	66.7
Did a medical provider ever give medical information about you to anyone else without your permission? (n = 587)	9.52	9.88	5.68	11.0	10.2	6.98	6.82	4.25	8.35
Has there ever been a time when a medical provider refused to give medical information about you to someone else in order to help you in some way? (n = 587)^a	6.82	0.00	4.44	19.5	10.0	9.09	6.67	0.00	7.22

^⋆

Shown are the percentages of respondents answering yes to the indicated questions. The total number of responses for each question is shown in parentheses. DM, diabetes mellitus; A, affected; AR, at risk.

Overall Pearson chi-square by disease group; P < 0.001.