TABLE II.
Text of question | CF | SCD | DM | HIV | BC-A | BC-AR | CC-A | CC-AR | Total |
---|---|---|---|---|---|---|---|---|---|
How likely is it that members of your immediate family could get medical information about you… | |||||||||
Without your knowledge (n = 580) | 33.3 | 31.6 | 44.1 | 27.4 | 38.8 | 40.0 | 50.0 | 37.5 | 36.6 |
Without your permission (n = 578) | 16.5 | 26.8 | 30.7 | 12.6 | 25.0 | 28.9 | 26.7 | 26.0 | 23.4 |
How likely is it that health insurers could get medical information about you… | |||||||||
Without your knowledge (n = 539) | 73.3 | 58.2 | 72.0 | 63.6 | 85.4 | 75.0 | 77.3 | 71.1 | 70.5 |
Without your permission (n = 547) | 62.3 | 53.7 | 59.4 | 59.7 | 71.7 | 54.6 | 65.2 | 51.1 | 59.4 |
How likely is it that employers could get medical information about you… | |||||||||
Without your knowledge (n = 344)a | 38.7 | 14.6 | 46.0 | 23.5 | 38.5 | 44.7 | 60.9 | 43.3 | 37.2 |
Without your permission (n = 339)a | 31.2 | 16.7 | 41.0 | 23.5 | 25.6 | 37.8 | 58.3 | 34.5 | 32.2 |
How likely is it that public health authorities could get medical information about you… | |||||||||
Without your knowledge (n = 573) | 56.8 | 61.1 | 56.0 | 57.9 | 70.0 | 53.3 | 54.4 | 59.6 | 58.5 |
Without your permission (n = 568) | 45.2 | 50.5 | 52.0 | 51.6 | 59.2 | 46.7 | 51.2 | 52.1 | 50.7 |
How likely is it that hospital workers could get medical information about you… | |||||||||
Without your knowledge (n = 580) | 71.1 | 75.0 | 74.3 | 70.8 | 78.0 | 77.8 | 73.9 | 83.7 | 74.7 |
Without your permission (n = 580) | 57.3 | 60.2 | 69.7 | 62.1 | 70.0 | 75.6 | 59.6 | 74.0 | 64.8 |
Shown are the percentages of respondents reporting that the indicated events were “likely” to occur. The total number of responses for each question is shown in parentheses. DM, diabetes mellitus; A, affected; AR, at risk.
Overall Pearson chi-square by disease group; P < 0.05.