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. Author manuscript; available in PMC: 2016 Mar 28.
Published in final edited form as: Am J Med Genet C Semin Med Genet. 2003 May 15;119C(1):51–59. doi: 10.1002/ajmg.c.10006

TABLE IV.

Attitudes Toward Medical Provider, Insurer, and Employer Confidentiality

Text of question CF SCD DM HIV BC-A BC-AR CC-A CC-AR Total
I don’t mind if my medical provider gives medical information about me to other providers when it is for my benefit (n = 580)a 88.1 86.9 84.3 70.4 80.0 51.1 93.6 66.0 79.4
People frequently are harmed when medical providers release information about them (n = 591) 23.0 32.7 17.3 43.9 14.3 35.6 36.2 26.0 28.6
When medical providers promise they will keep information confidential, they usually keep these promises (n = 591) 77.2 70.7 72.6 78.8 56.0 75.6 66.7 72.0 72.4
The law should punish medical providers who give patients’ information to other providers without permission (n = 593) 70.3 68.4 58.7 77.6 68.0 62.2 66.0 62.0 67.3
I don’t mind if my health care provider gives medical information about me to my health insurance company without my permission (n = 592) 9.00 19.2 20.6 20.2 22.0 8.89 23.4 18.0 17.6
Doctors should be punished if they release medical information about patients to health insurance companies without permission (n = 597) 73.3 72.7 69.6 76.0 62.5 82.2 66.0 81.6 72.9
Employers should be allowed to get medical information about people without their permission (n = 590) 2.97 5.05 2.97 2.02 4.08 0.00 8.51 2.04 3.39
Doctors should be punished if they release medical information about patients to employers without their permission (n = 590) 80.2 79.8 79.2 82.7 75.5 86.7 83.0 76.0 80.3

Shown are the percentages of respondents reporting that they agree with the statements indicated. The total number of responses for each question is shown in parentheses. DM, diabetes mellitus; A, affected; AR, at risk.

a

Overall Pearson chi-square by disease group; P < 0.05.