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. Author manuscript; available in PMC: 2016 Mar 28.
Published in final edited form as: Am J Med Genet C Semin Med Genet. 2003 May 15;119C(1):51–59. doi: 10.1002/ajmg.c.10006

TABLE V.

Attitudes Toward Family Member Confidentiality

Text of question CF SCD DM HIV BC-A BC-AR CC-A CC-AR Total
I don’t mind if my doctor gives medical information about me to family members without my permission (n = 593) 32.7 27.3 29.4 22.2 30.0 20.0 34.0 30.0 28.2
People should be allowed to get medical information about a person in their family without that person’s permission (n = 588) 6.00 9.09 12.9 7.07 16.3 13.3 17.0 14.6 10.9
If someone wanted to know whether his or her parent has a hereditary condition, he or she should be able to find out (n = 586)a 68.0 70.7 72.3 42.3 82.0 67.4 83.0 79.6 68.3
Doctors should be punished if they release medical information about a patient to other members of the patient’s family without permission (n = 585) 54.5 59.8 50.5 62.2 42.9 64.4 42.6 49.0 54.4
It is the responsibility of family members to share information on hereditary diseases that might affect other family members (n = 589)a 96.0 87.6 96.0 80.8 93.9 100 100 98.0 92.7

Shown are the percentages of respondents reporting that they agree with the statements indicated. The total number of responses for each question is shown in parentheses. DM, diabetes mellitus; A, affected; AR, at risk.

a

Overall Pearson chi-square by disease group; P < 0.05.