Table 1.

Semi-structured interview guide for focus groups

What comes to mind when you think about genomics, genetics and DNA testing? (probe: heritage and ancestry) Has anyone here or do you know of anyone who has participated in a study where they were asked to provide specimens of blood or cheek swabs for DNA? What do you think about that experience? (Describe the difference between genetic testing, genomic sequencing and show picture of a biobank) What is the advantage of participating in a genomic study where your specimens will be stored and tested? What would you expect it to do for your health? For that of your family and those that you care about? What are your concerns about genomic testing about having your specimens stored and how it might impact you and people you care about? If you decided to participate in a biobanks what protection would you like to see? Many institutions, Columbia included, are interested in maintaining an on-going dialogue about genomic testing and biobank storage with members of the community. What do you think would be the most effective way of maintaining an exchange of ideas and information? Your choice can be anything, email communication, dinners, e-newsletters, printed newsletters, in-person consultation hours, what do you think would work best? Is there anything else you would want us to know?