Table 1.

Percentage of respondents agreeing that medical researchers should be able to get their medical records without their permission “if it will help them to do research that will advance medical knowledge in the future.”

A. Distribution of responses by disease group.
Response (%)	CF	SCD	Diabetes	HIV	BC Affected	BC At Risk	CC Affected	CC At Risk	Total
Agree	32.7	35.7	24.8	33.0	36.0	26.7	31.9	26.0	31.1
Neutral	6.9	16.3	15.8	17.5	6.00	22.2	14.9	8.00	13.6
Disagree	60.4	48.0	59.4	49.5	58.0	51.1	53.2	66.0	55.4

Text of question presented here: “Medical researchers should be able to get my medical records without my permission if it will help them to do research that will advance medical knowledge.” The odds quantities are the proportional odds of agreeing with the statement and are adjusted for all other demographic variables listed. Those who did not answer or answered “don't know” were not included.

^•Odds ratio significant at p ≤ 0.05.

CF = cystic fibrosis; SCD = Sickle Cell Disease; HIV = Human Immunodeficiency Virus; BC = breast cancer; CC= colon cancer