Table 4.
Caregiver Distress as Measured by the mCSI and Zarit Caregver Burden Scale.a
| Caregiver | Tool | Sum Score | Sources of Distress |
|---|---|---|---|
| 1 | mCSI | 3 | Caregiving is confining, changes personal plans, upset by changes in person |
| Zarit | 10 | Angry around loved one, afraid for future, strained around loved one, social life suffers, uncomfortable to have friends over | |
| 2 | mCSI | 0 | n/a |
| Zarit | 0 | n/a | |
| 3 | mCSI | 0 | n/a |
| Zarit | 11 | Loved one asks for more than needs, embarrassed over behavior, afraid for future, loved-one dependent on me, should be doing more, could do a better job | |
| 4 | mCSI | 8 | Caregiving is confining, family adjustments, changes personal plans, emotional adjustments, upsetting behaviors, upset by changes in person, overwhelmed |
| Zarit | 34 | Loved one asks for more than needs, no time for self, angry around loved one, afraid for future, loved-one dependent on me, strained around loved one, no privacy, social life suffers, loved one expects me to take care of him, could do a better job | |
| 5 | mCSI | 9 | Sleep is disturbed, caregiving is confining, family adjustments, changes in personal plans, upset by changes in person, overwhelmed |
| Zarit | 21 | No time for self, afraid for future, loved-one dependent on me, social life suffers, loved-one expects me to take care of her, lost control life | |
| 6 | mCSI | 5 | Physical strain, caregiving is confining, family adjustments, changes in personal plans, time demands |
| Zarit | 30 | Loved one asks for more than needs, no time for self, afraid for the future, loved one dependent on me, strained around loved-one, no privacy, should be doing more, could do more | |
| 7 | mCSI | 6 | Sleep disturbed, physical strain, caregiving is confining, time demands, overwhelmed |
| Zarit | 19 | Stressed meeting other Responsibilities, afraid future, loved-one dependent on me, loved one expects me to take care of him, lost control life |
Abbreviations: n/a, not available; mCSI, modified Caregiver Distress Scale.
a The maximum sum score on the mCSI is 26, suggesting regular distress. The maximum score on the Zarit Caregiver burden scale is 88, suggesting the caregiver nearly always feels burdened.