Table 4.

Importance of Knowing and Preference for Notification Versus Permission in Anonymous and Identifiable Scenarios¹,²

	Importance of knowing that genetic research is being done with samples in identifiable versus anonymous scenarios		Preference for notification versus permission by those who want to know that research is being done with samples
Independent variables (with coding)	Not important to know in both (0) versus important to know in both (1) n = 684	Not important to know in both (0)versus important to know only when identifiable (1) n = 261	Anonymous:notification (0) versus permission (1) n = 648	Identifiable:notification (0) versus permission (1)n = 748
Age (years)
1 18–29 ∏ 5 ≥ 65	.73 (.58–.91)	.89 (.68–1.15)	.87 (.75–1.02)	.75 (.65–.87)
Gender
1 Male ∏ 2 Female	1.41 (.88–2.26)	.88 (.50–1.54)	1.19 (.80–1.76)	1.32 (.94–1.87)
Education
1 < High school ∏ 5 Beyond college	1.01 (.82–1.26)	1.06 (.83–1.35)	1.69 (1.42–2.01)	1.55 (1.33–1.82)
Race
1 White ∏ 2 Black	1.68 (.74–3.82)	1.12 (.43–2.96)	1.91 (1.14–3.20)	.92 (.57–1.47)
Income
1 <$20,000 ∏ 5 > $80,000+	.78 (.65–.93)	.87 (.70–1.07)	1.02 (.88–1.17)	.93 (.82–1.05)
Religiosity
1 Not religious ∏ 2 Religious	1.21 (.67–2.20)	1.01 (.50–2.04)	.52 (.30–.89)	1.11 (.71–.172)
Health status
1 Poor ∏5 Excellent	1.06 (.85–1.33)	1.16 (.89–1.52)	1.23 (1.03–1.48)	1.10 (.92–1.26)
Chronic condition
1 No ∏2 Yes	1.10 (.64–1.87)	1.24 (.66–2.34)	1.21 (.78–1.87)	1.02 (.69–1.50)
Surgery
1 No ∏2 Yes	1.81 (.99–3.29)	1.65 (.78–3.40)	1.12 (.70–1.81)	1.25 (.82–1.91)
How private
1 Very private ∏5 Very open	.69 (.56–.83)	.68 (.54–.86)	.84 (.72–.98)	.89 (.77–1.02)
Trust in researchers
1 Little/Not at all ∏ 3 Completely	.68 (.44–1.05)	.57 (.33–.96)	.40 (.29–.56)	.46 (.34–.63)

¹Reported as odds ratio (95% confidence interval).

²Statistically significant values are indicated in bold.