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. Author manuscript; available in PMC: 2016 Apr 4.
Published in final edited form as: Am J Bioeth. 2008 Oct;8(10):62–70. doi: 10.1080/15265160802478404

Table 5.

Preferences for Notification versus Permission1

Notification preferences If anonymous If identifiable
Notification required 365 (43%) 412 (42%)
Permission required 475 (56%) 554 (57%)
Not ascertained 10 (1%) 5 (<1%)
Total 850 971
1

This question was asked of those respondents who indicated that it is moderately or very important for them to know research is being done with their sample.