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. Author manuscript; available in PMC: 2016 Apr 4.
Published in final edited form as: Am J Med Genet A. 2004 Jul 30;128A(3):261–270. doi: 10.1002/ajmg.a.30057

Table I. Demographic Characteristics of Respondents, by Medical Condition.

CF SCD Diabetes HIV HIV BC affected BC at risk CC affected CC at risk Total









N (no.) 102 99 104 100 50 45 47 50 597
a Relationship to self (%)
 Affected adult 34.3 36.4 61.5 100 100 0.00 100 0.00 55.6
 Parent 65.7 63.6 38.5 0.00 0.00 0.00 0.00 0.00 28.5
 At risk 0.00 0.00 0.00 0.00 0.00 100.0 0.00 100 15.9
a Age category (%)
 <40 years old 55.5 63.3 24.5 25.0 8.00 42.2 4.35 10.2 33.5
 40–49 years old 33.7 28.6 36.3 56.0 22.0 22.2 13.0 24.5 32.8
 50+ years old 10.9 8.16 39.2 19.0 70.0 35.6 82.6 65.3 33.7
a Sex (%)
 Male 22.6 15.2 29.8 56.0 0.00 0.00 42.6 38.0 27.5
 Female 77.5 84.9 70.2 44.0 100 100 57.5 62.0 72.5
a Marital status (%)
 Married/partnered 76.0 42.9 82.7 36.0 68.0 82.2 84.8 84.0 66.1
 Divorced/separated 11.0 21.4 9.62 28.0 24.0 13.3 15.2 6.00 16.5
 Widowed 1.00 2.04 1.92 7.00 2.00 0.00 0.00 2.00 2.36
 Other 12.0 33.7 5.77 29.0 6.00 4.44 0.00 8.00 15.0
a Race (%)
 African-American 7.92 91.9 13.6 69.0 14.0 6.67 6.38 0.00 32.8
 White 86.1 4.04 81.6 25.0 82.0 91.1 91.5 94.0 62.5
 Other 5.94 4.04 4.85 6.00 4.00 2.22 2.13 6.00 4.71
a Education level (%)
 Less than high school 0.99 6.06 6.80 26.0 0.00 0.00 6.38 4.08 7.58
 High school degree 28.7 37.4 18.5 24.0 34.0 13.3 23.4 12.2 25.1
 Some college/degree 55.5 46.5 40.8 36.0 44.0 60.0 36.2 49.0 45.5
 Graduate school+ 14.9 10.1 34.0 14.0 22.0 26.7 34.0 34.7 21.9
a Income (%)
 <$20,000/year 17.7 48.4 12.8 60.6 8.33 2.50 7.14 2.13 25.6
 $20,000–$60,000/year 38.5 36.6 27.7 30.3 39.6 35.0 28.6 27.7 33.1
 >$60,000/year 43.8 15.1 59.6 9.09 52.1 62.5 64.3 70.2 41.3
a Employment status (%)
 Full-time employed 54.0 39.4 53.5 23.7 66.0 73.3 52.2 67.4 50.1
 Part-time employed 19.0 19.2 18.8 15.1 20.0 17.8 10.9 6.12 16.6
 Unemployed 27.0 41.4 27.7 61.3 14.0 8.89 37.0 26.5 33.3

Generally, fewer than 2% of respondents had missing values for demographics. The exception was income, for which 6.4% of responses were missing. Those with HIV had the lowest percentage of missing values (2.6%), and those with diabetes had the highest (26.3%). BC, breast cancer; CC, colon cancer.

a

Overall χ2, P<0.001.