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. Author manuscript; available in PMC: 2016 Apr 4.
Published in final edited form as: Am J Med Genet A. 2004 Jul 30;128A(3):261–270. doi: 10.1002/ajmg.a.30057

TABLE II. Self-Related Privacy Level, and Percentage of Other Parties who Know About Respondent=s Medical Condition, by Medical Condition.

CF SCD Diabetes HIV BC affected BC at risk CC affected CC at risk Total









N (no.) 102 99 104 100 50 45 47 50 597
a How would you rate how private you are?
 Private 19.0 32.6 29.4 47.8 24.0 28.9 34.0 40.0 31.84
 Neutral 32.0 45.3 28.4 32.6 36.0 33.3 34.0 32.0 34.25
 Open 49.0 22.1 42.2 19.6 40.0 37.8 31.9 28.0 33.91
Do they know
a,bSpouse/ex-spouse
   Yes 98.5 100 96.3 75.0 97.7 94.6 100 97.7 96.6
   No 1.47 0.00 3.75 25.0 2.27 5.41 0.00 2.33 3.41
 Partner/ex-partner
  Yes 100 100 100 96.8 100 100 100 100 98.6
  No 0.00 0.00 0.00 3.23 0.00 0.00 0.00 0.00 1.39
a Children
  Yes 85.4 83.7 98.0 52.2 95.1 73.3 95.0 100 84.3
  Some do/some do not 2.44 6.12 0.00 13.0 2.44 6.67 0.00 0.00 4.20
  No 12.2 10.2 2.00 34.8 2.44 20.0 5.00 0.00 11.5
a Immediate family
  Yes 100 94.9 99.0 65.6 90.0 88.9 95.4 97.9 91.2
  Some do/some do not 0.00 3.06 0.00 8.89 2.00 6.67 4.65 2.08 3.19
  No 0.00 2.04 1.03 25.6 8.00 4.44 0.00 0.00 5.66
a Friends and neighbors
  Yes 54.4 28.9 63.3 20.8 74.0 48.8 59.1 34.0 46.6
  Some do/some do not 41.3 57.7 29.6 52.0 26.0 44.2 29.6 52.0 42.5
  No 4.35 13.4 7.14 27.3 0.00 6.98 11.4 14.0 10.9
a Employer
  Yes 86.7 74.1 91.1 51.6 91.7 50.0 87.5 41.9 74.4
  No 13.3 25.9 8.93 48.4 8.33 50.0 12.5 58.1 25.6
a Healthcare provider
  Yes 96.6 95.9 96.8 87.5 85.7 86.7 88.6 55.1 89.1
  Some do/some do not 3.37 3.06 1.05 3.75 14.3 11.1 9.09 36.7 8.01
  No 0.00 1.02 2.11 8.75 0.00 2.22 2.27 8.16 2.91
a Health insurance company
  Yes 92.7 92.9 94.3 80.7 95.8 46.9 90.2 45.0 84.5
  No 7.32 7.06 5.68 19.4 4.17 53.1 9.76 55.0 15.5

BC, breast cancer; CC, colon cancer.

a

Overall χ2, P<0.001.

b

Including only those who reported they were married, separated, or divorced.