Table 1.

Characteristics of Focus Group Participants (n=53)
Gender
Female		26 (49%)
Male		27 (51%)
Age (years)
Mean		49.7
Range		18–78
25th–75th percentile		40–61.25
No response		1 (2%)
Race
American Indian or Alaska Native		0 (0%)
Asian		11 (21%)
Black or African-American		4 (8%)
Native Hawaiian or Other Pacific Islander		0 (0%)
White		38 (72%)
More than one race		0 (0%)
Prefer not to disclose		0 (0%)
Ethnicity
Hispanic or Latino		1 (2%)
Not Hispanic or Latino		48 (91%)
Prefer not to disclose/unknown/no response		4 (8%)
Have you/has your child been hospitalized in the past calendar year?
No		36 (68%)
Yes		17 (32%)
Recruitment method
Adult cardiology/nephrology clinic		15 (28%)
Pediatric cardiology/nephrology clinic		10 (19%)
Research registry		28 (53%)