| 1 |
Support for Research and Desire for individualized Care |
I think the way it’s said is very important, the relationship you have with your doctor, but also research is just very, very important, which I’m sure is why we’re all here. Research is very important. (FG4) |
| 2 |
Patients Value Physician-Patient Autonomy |
We have a game plan, what to do and stuff, but it never works just doctors alone. You have to be informed. The consumer, just like any other thing, you have to know your condition of the body when it is the one type of the medication, how it works at stuff. (FG6) |
| 3 |
The Importance of Patient Trust in Physicians and Institutions |
When you go to the doc, you put all your faith and trust in him, but I think it’s also incumbent upon us as patients to learn as much as we possibly can so as we move forward, we will have the knowledge. We know how our bodies feel. (FG3) |
| 4 |
Significance of Shared Decision Making for Study Design |
Randomization is great to figure out what’s safe and what’s not safe because then you can use controls and you can do the studies. But I think for a unique individual like my particular situation, I prefer observation if observation means okay, I get the prescription, so my doctor prescribed the medication and then a researcher came back and said okay, what were [my] outcomes? Because I’d like to feel the doctor chose what he thought was the best one for me …versus one where he was just forced to assign something to me without the benefit of personalization and then we just looked at the outcome. (FG 1) |
| 5 |
Significance of Shared Decision Making for Informed Consent and Notification |
You can post things. You can hand people sheets of paper. If it’s important enough for your doctor who has you in and out in limited period of time, if it’s important enough for your doctor to actually sit down and discuss it with you, then you listen up. That’s when people pay attention, especially if their doctor is empathetic and tuned in and willing to understand that a lot of people kind of glaze over and they’re able to provide the information in such a way that makes it comprehensible to their patient. (FG2) |
| 6 |
Significance of Shared Decision Making for Oversight and Community Engagement |
I guess that as long as the oversight is comprised of not just the doctors, but also family members and things like that then, yeah, I would like to have an oversight, but the oversight cannot be just unilateral. It has to be bilateral. It has to be everybody. (FG1) |
