Table 2.

Anticipated benefits for MND practice and policy

Stakeholder group	Benefit
Patients	Improved engagement of patients and families in care
	Improved patient health literacy
	Timely and well-informed treatment decisions, leading to proactive symptom management
Health professionals	Implementation of proactive approach to symptom management
	Enhancement of multidisciplinary team care
	Knowledge transfer of clinically useful information
	Promotion of evidence-based practice
Health services	Improved organisational efficiency
	Cost savings from reduced emergency admissions
	Improved use of resources
	Knowledge transfer from research directly to organisations
Healthcare policy	Links policy to clinical work
	Incorporation of evidence-based research into policy
	Tools incorporate policy unique to each country
Research community	Consolidation of international MND research community
	Support for international MND healthcare community
	Decision tool dissemination to other deteriorating neurological conditions

MND, motor neurone disease.