Table 4.
Questionnaires at baseline and follow-up
| Baseline | 5-year follow-up | 10-year follow-up | Telephone interview | |
|---|---|---|---|---|
| Demographics | ||||
| Age | Y | N | N | N |
| Sex | Y | N | N | N |
| Marital status | Y | Y | Y | Y |
| Retardation/physical disabilities | Y | Y | Y | Y |
| Diabetes | ||||
| Time of diagnosis | Y | N | N | N |
| Symptoms at time of diagnosis | Y | N | N | N |
| Diabetes treatment regime | Y | Y | Y | Y |
| Diet plan and advice | Y | Y | Y | Y |
| Diabetes education for the patients | Y | Y | Y | Y |
| Ophthalmological complications | Y | Y | Y | Y |
| Kidney complications | Y | Y | Y | Y |
| Cardiovascular complications | Y | Y | Y | Y |
| Neurological complications | Y | Y | Y | Y |
| Cerebrovascular complications | Y | Y | Y | Y |
| Radiation exposure in last 10 years | Y | Y | Y | Y |
| Family history of diabetes and other diseases | Y | Y | Y | Y |
| Socio-economic status | ||||
| Household composition | Y | Y | Y | Y |
| Education | Y | Y | Y | Y |
| Health insurance | Y | Y | Y | Y |
| Employment | Y | Y | Y | Y |
| Net household income | Y | Y | Y | Y |
| Personal health behavior, life style | ||||
| Smoking | Y | Y | Y | Y |
| Alcohol | Y | Y | Y | Y |
| Physical activity | Y | Y | Y | Y |
| Food frequency questionnaire | Y | Y | Y | Y |
| Regular medical checks | Y | Y | Y | Y |
| Personal health history | ||||
| Other diseases | Y | Y | Y | Y |
| Food supplement intake | Y | Y | Y | Y |
| Other medication | Y | Y | Y | Y |
| Self reported weight and weight change | Y | Y | Y | Y |
| Mental health | Y | Y | Y | Y |
| Reproductive history | Y | Y | Y | Y |
| Health-related quality of life | ||||
| WHO-5, SF-36 | Y | Y | Y | Y |
| WHOQUOL-Bref, SCL-14 | Y | Y | Y | N |
| Depression | ||||
| PHQ, PAID, ADS-L | Y | Y | Y | Y |
| Information needs, patient time | ||||
| CPS, API |
Questions and questionnaires at baseline, 5-year follow-up, 10-year follow-up, and annual telephone interview. Y stands for ‘yes’ (question asked) and N stands for ‘no’ (question not asked)
Short form 36 health survey questionnaire (SF36), World Health Organization 5 questions health survey (WHO5), World Health Organisation quality of life assessment (WHOQOL-Bref), symptom checklist 14 (SCL-14), patient health questionnaire (PHQ), problem areas in diabetes (PAID), Allgemeine Depressionsskala (ADS-L), Control Preferences Scale (CPS), Autonomy Preference Index (API)