Table 4.

Data Cost, Request Process and Timelines, Data Storage, and Recency for State All Payer Claims Data Sets (APCDs) Available to External Users

NAME OF DATA SET	TYPE OF FILE	DATA COSTa	DOCUMENTS AND APPROVALS REQUIRED TO SUCCESSFULLY REQUEST THE DATA SET						TIMELINESS OF DATA REQUEST APPROVAL	DATA STORAGE AND ACCESS POLICIES	MOST RECENT YEAR OF DATA AVAILABLE
			PROJECT SUMMARY	DMP	DUA	VARIABLE SELECTION WORKSHEET	IRB APPROVAL	PRIVACY BOARD REVIEW
Massachusetts All-Payer Claims Database	Level 2 File	Fixed fee per file type of data depending on requestor: academic, $$$; and others, $$$	Yes	Yes	Yes	Yes	No	No	∼12 to 20 weeks	Physical data files mailed to researcher (rigorous policies on securing research environment)	2012
Maine All-Payer Claims Database		Fixed fee per file type per year of data depending on requestor: commercial, $$$; assessed (e.g., provider, health insurer, etc.), $$$; nonprofit and educational, $$; redistributor, $$$	No	No	Yes	No	No	No	At least 6 weeks for nonpractitioner-identifiable data; at least 8 weeks for practitioner-identifiable data	Physical data files mailed to researcher (no specific policies on securing research environment)	Commercial & Medicaid (2014) Medicare FFS (2013)
New Hampshire Comprehensive Health Care Information System	Commercial Limited Use Data Set	No cost	Yes	No	Yes	Yes	No	No	∼12 weeks	Physical data files mailed to researcher (no specific policies on securing research environment)	2014
Colorado All-Payer Claims Database	Limited Data Set	Licensing fee based: nonprofit with revenues $3–$5 mil, $$$; nonprofit with revenues of $1–$3 mil, $$$; nonprofit with revenues <$1 mil, $$$; academic institutions, $$$; state agencies,$$; other organizations, $$$b	Yes	Yes	Yes	Yes	No	No	∼4 to 11 weeks	Physical data files mailed to researcher (rigorous policies on securing research environment)	2012
	Identifiable Information Data Set		Yes	Yes	Yes	Yes	IRB approval, Privacy Board Review Approval, or proof of patient authorization			Physical data files mailed to researcher (rigorous policies on securing research environment)
Maryland Medical Care Database		No cost	Yes	Yes	Yes	Yes	Yes	No	At least 4 weeks	Physical data files mailed to researcher (rigorous policies on securing research environment)	2014
Oregon All Payer All Claims Database Limited Data Set	Limited Data Set	Fixed fee per file type per year of data ($$)	Yes	Yes	Yes	Yes	Yes	No	At least 6 weeks	Physical data files mailed to researcher (rigorous policies on securing research environment)	2011

Notes: (DMP) data management plan; (DUA) data use agreement; (FFS) fee-for-service; (IRB) institutional review board.

Data are based on information available as of November 2014.

^a$ denotes typically < $1000; $$ denotes typically >=$1000 and < $10,000; $$$ denotes typically > $10,000.

^bAcademic institutions, state agencies, and nonprofits with revenue less than $5 million are eligible for external APCD scholarship support that covers almost two-thirds of the cost, on average.