Table 1.
Governance and Technical Challenges
| SENTINEL | PCORNET | NIH COLLABORATORY | |
|---|---|---|---|
| Longitudinal capture of clinical encounters over defined periods | +++ | +* | ++ |
| Depth of clinical data | ++* | +++ | ++* |
| Patient-reported outcomes (PROs) | +* | +++ | ++* |
| Public health authority | +++ | – | – |
| Data standardization | +++ | +++ | +++ |
*
Exception: Participating integrated delivery systems, such as Kaiser Permanente, differ from large administrative health plans in their ability to provide longitudinal capture of clinical encounters over defined periods and to obtain depth of clinical data as well as patient-reported outcomes (PROs).