TABLE 1.
Demographic Characteristics of Patients in the 36 Articles Reviewed for Successful Dying
Study Authors and Year |
Country | Design/ Methods |
Measure of a Good Death | Diagnosis/ Population |
Age (y) | Gender | Ethnicity/Race | No. of Patients |
No. Family Members |
No. of HCPs |
---|---|---|---|---|---|---|---|---|---|---|
Payne (1996)38 | UK | Qualitative | Elicit (patient and palliative care professionals perception of death) | Advanced cancer | Range: 30–81 | 50% Male | — | 18 | — | 20 |
Payne and Hillier (1996)39 | UK | Qualitative/quantitative | Narratives from participants used to define a “good death” | Cancer/hospice | Mean: 66 | 50% Male | — | 67 | — | — |
Leichtentritt (2000)40 | Israel | Qualitative | Interviewing discussing good death | General population and medical patients | Range: 60–86 | 57% Female | Israelis | 26 | — | — |
Steinhauser (2000)41 | USA | Quantitative | Survey (rank 44 attributes important at end of life) | Veterans with advanced chronic illness | Mean: 68 | 78% Male | 69% Non-Hispanic, White | 340 | 332 | 361 |
Steinhauser (2000)33 | USA | Qualitative | Discuss (experiences with deaths of family members, friends, or patients and reflect on what made those deaths good) | Oncology and HIV | Range: 26–77 | 36% Male | 70% Non-Hispanic, White | 14 | 4 | 57 |
Pierson (2002)42 | USA | Qualitative | Describe a (good death) | AIDS | Mean: 41 | 91% Male | 69% Non-Hispanic, White | 35 | — | — |
Vig (2002)43 | USA | Qualitative | Open-ended questions assessing patients views of end of life | Cancer and heart disease | Range: 60–84 | 87% Female | — | 16 | — | — |
Tong (2003)44 | USA | Qualitative | Focus groups to elicit views about death and dying | General population | Range: 14–68 | 67% Female | 53% Non-Hispanic, White 23% Black 14% Hispanic |
95 | — | — |
Vig (2004)45 | USA | Qualitative | Open-ended questions assessing patients views of end of life | Cancer and heart disease | Mean: 71 | 100% Male | — | 26 | — | — |
Goldstein (2006)46 | Amsterdam | Qualitative | Open-ended question interview to explore a “good death” | Cancer patients | Range: 39–83 | 70% Male | Non-Hispanic, White | 13 | — | — |
Hirai (2006)47 | Japan | Qualitative | Asked participants for components of a “good death” | Cancer patients | Mean: 62 | 54% Male | — | 13 | 10 | 40 |
Rietjens (2006)48 | Netherlands | Qualitative | Respondents were asked to indicate how important they considered 11 attributes of the dying process | General population | Range: 20–93 | 61% Female | — | 1,388 | — | — |
Lloyd-Williams 2007)49 | UK | Qualitative | Semistructured interview based on concepts of independence, health, and well-being, societal support; theme of end of life reported in article | Community-dwelling adults | Range: 80–89 | 40% Male | 85% English | 40 | — | — |
Miyashita (2007)32 | Japan | Quantitative | Asked subjects about the relative importance of 57 components of a good death | General population | Range: 49–70 | 48% Male | — | 2,548 | 513 | — |
Gott (2008)50 | UK | Qualitative | Interviews to explore extent that older adult views are consistent with palliative care “good death” model | Advanced heart failure and poor prognosis | Mean: 77 | 53% Male | 40 | — | — | |
Hughes (2008)8 | USA | Qualitative | Definition of good death | Lung cancer | Range: 24–85 | 50% Male | — | 100 | — | — |
De Jong (2009)51 | Nova Scotia | Qualitative | Hear stories of good and bad deaths from those directly involved in palliative care | Palliative patients | — | — | — | 3 | 3 | 9 |
Tayeb (2010)30 | Saudi Arabia | Qualitative/Quantitative | Principles of good death; agree or disagree with Western principles of good death | Hematology/oncology patients | — | 58% Male | Non-Saudi Arabian | 26 | 77 | 181 |
Hattori (2012)52 | USA | Qualitative | Interviews asking “What does a good death mean to you? | Japanese older adults living in Hawaii | Mean: 78 | 77% Female | Japanese | 18 | — | — |
Reinke (2013)26 | USA | Qualitative/Quantitative | In-person interview and questionnaire to rate what is most important in last 7 days of life | Veterans with chronic obstructive pulmonary disease | Mean: 69 | 97% Male | 291 White | 376 | — | — |