Table 2.
Similarities and Differences in Development and Focus of the Tools by Site
| Components of Tools | WNYC2 | TBCCN |
|---|---|---|
| Target Audience | • African American • Urban & rural lower income (including White) • Hispanic • “Healthy” lay community members from CNP center catchment area of Buffalo & Niagara Falls, New York regions |
• African American • White • Hispanic • “Healthy” lay community members from CNP center's catchment area of Tampa Bay, Florida (Pasco, Hillsborough and Pinellas counties) |
| Language | • English and Spanish | • English and Spanish |
| Intended Users | • Research faculty/staff • Community health educators • Used with mobile laboratory |
• Community partner groups • Research faculty/staff • Community health educators |
| Community Input and Ideas | • Request for research examples from local investigators (e.g., Hoy y Mañana), Jewels in Our Genes • Request for examples & photos of local people & programs • Request for basic background on cancer to understand relationship with biobanking • Emphasis on content addressing research injustices. |
• Request for information on cancer innovations from community partners • Interest generated through biobank facilities tour • Request for information on how biospecimens could help specific racial/ethnic groups • Emphasis on content addressing research disparities. |
| Content/ Emphasis | • Lack of minority representation in biospecimen research • Importance of community participation • Addressing research mistrust and concerns • Culturally relevant examples to show that community members have participated in genetic studies • Clarification about difference between biobanking research and medical diagnostics or genetic counseling |
• Lack of minority representation in biospecimen research • Importance of community participation • Addressing research mistrust, myths, and concerns (e.g., cloning, access to donated biospecimens, withdrawal of participation, privacy, safety) • Culturally relevant examples regarding wanting to see/hear from cancer survivors about importance of biospecimen research |
| Format & Length | • PowerPoint Educational Program with embedded survey questions using Audience Response System • 1-hour participation time, including discussion and questions |
• Audiovisual toolkit (DVD/brochure) • 11 minute DVD + 12-page brochure • Total time: 23 minutes to view/read materials |
| Evaluation/Assessment Process | • Embedded survey questions about demographics, knowledge & willingness to participate • Assessment of the number and type of volunteers participating by donating blood and completing epidemiological surveys for the DataBase & BioRepository (DBBr) |
• Ongoing learner verification checks • Tools became part of two pilot studies to evaluate efficacy of materials in increasing outcomes, (e.g., knowledge, self-efficacy, attitudes, etc.,) measured by the BANKS18 • Analysis of pilot projects is under way |